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Work

Thu, March 10, 2016 11:21 PM

Are you working or on disability? I am working but it is hard when my body aches, I'm in pain from the bathroom trips and exhausted. I'm afraid of losing my job because I have taken off too much time with my flares. Thinking of disability but then I feel ashamed of applying for it because I think I should be able to work. Make sense? Catch 22; denial??!?

dturn
Joined Nov 8, 2015

Wed, June 15, 2016 12:10 AM

Reply posted for dturn.

I can completely relate. I work a 50 hour a week job, that I don't want to ( and can't afford to lose ). I was nervous about discussing my condition with management and HR for fear of stigma. I finally did, because of the struggle of flares and managing work. So far, I've had a good response. I do suggest filing for FMLA, for job protection. Try not to beat yourself up on the days when your body stops you from doing everything you want to do.

jessicakes
Joined May 4, 2016

Mon, June 06, 2016 8:02 PM

Reply posted for dturn.

If you don't want to go ahead and file disability, might I suggest seeing Human Resources or talking to your boss first if you have one and letting them know your situation. My former job was a lot more understanding and allowed me to work off site sometimes to make up the difference in having to be away from the office during flares. It's hard sometimes to tell an employer or an HR office, but it may be worth it especially if you feel your job may be in jeopardy. Otherwise, they often just assume that you are becoming lazy or not wanting to work and are more likely to just fire you, rather than understand where you're coming from and that you are there to work and are trying your best with what your health has allowed.

beenee
Joined Jun 3, 2016

Tue, March 15, 2016 3:19 PM

Having IBD and a job can be challenging at times. Most individuals can work; however, some patients find they struggle to manage IBD and their job. There are federal state laws that protect people with IBD. Learn more in our Employment and IBD fact sheet at: http://www.ccfa.org/assets/pdfs/employment-and-inflammatory.pdf

administrator
Joined Oct 12, 2017

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