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Totally tired of being sick and tired

Tue, July 08, 2008 12:00 AM

I began my life with stomach problems. When I was a child my stomach problems were called a nerves stomach, or food allergies. The real problems associated with the Crohns did not hit me until after I had my son, whom is soon to turn 28. At the time I started having serious problems it ban with throwing up, I was diagnosed with having an ulcer ( with out running any test) and treated accordingly. When I was 30 I began experiencing pain in the upper right had side of my abdomen. I was hospitalized and latter diagnosed as a hypochondriac. By the time I was diagnosed with Gastroduadnal Crohns disease and Crohns of the stomach I was also diagnosed with Gastroparesis. ( half my stomach is paralyzed) Between the two complications I know struggle with mal nutrition , chronic dehydration, Neurally Mediated hypotension, Fibromyalgia, Chronic Fatigue syndrome… I also deal with the reality that I can’t seem to get medical information to help me deal with this issue constructively. As a result, I have had to deal with this issue alone, with out medical support of even the support of others that have dealt with this reality.

I am 52 years of age and am tired of dealing with this issue on a daily bases. To be honest, I know understand why my mother ended her life, and I don’t like this depression I am feeling caused by total exhaustion … I could use some clear understanding and support from anyone that understands what I am feeling…

bjengle
Joined Jul 8, 2008

Fri, July 25, 2008 3:03 PM

Reply posted for bjengle.

see a shrink-get a book from mayo clinic-go to stanford or mayo clinic don't just sit and let the crohn's win you have to be as active as possible in your health care no one elce will be as good at takening care of you but you, this is your job.

Keep changing doctors until you get one with the care and knowlage to put you in remission--it can be done. You are not your mother .

good luck

47r14v
Joined Jun 2, 2008

Wed, July 09, 2008 7:55 PM

Reply posted for bjengle.

I was diagnosed last year with Crohn's after 17 years of being told I had IBS. I had surgery to remove 18 inches of small intestine and I still have the pain and frequent BM's. My doc told me to take more immodium! I am now in the process of seeking a second opinion. I am taking Paxil to help me deal with leaving the house. I cry often b/c I want to go to parks, ride bikes, etc. with my kids but I am just so afraid. The more I read and discuss things with people, the better I seem to feel. There are days that I will sleep all night, be awake for an hour or two and want to take a nap!! I thought it was mental until I started coming here. Please know that you are not alone.

krbuerg
Joined Nov 23, 2008

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