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Hit a Wall

Wed, July 12, 2017 9:17 AM

I have had UC for 40+ years, most of my life. I have tried every available treatment. This disease is relentless. It has affected my eyes, liver, bile duct, pancreas, gall bladder, joints, anemia, mouth ulcers, small intestine, extreme constipation and bowel leakage, colon perforation, skin inflammation and ulcers, extreme fatigue and pain, pain and more pain. I feel like I hit a wall. I can barely function yet I must continue to try to hold down a job and work so I have insurance for health care. Other than that I can barely manage the basics of life. Where and how do we find the strength to keep fighting the fight? I don't know what it would feel like to wake up and not be extremely fatigued and sick. I need some encouragement.

CecCe
Joined Jul 12, 2017

Sat, July 22, 2017 9:02 AM

Reply posted for CecCe.

54 yo femalewith CD, diagnosed March, large colon removed, severe fistulas. I have a good doc. My friends text me a lot to see how I'm doing. I avoid unnecessary medical treatments. I find entocort works great for flares. I have a strong connection to the spiritual realm, not necessarily God, and this has kept me alive. During the first surgery, the surgeon indicated I could have died. If you are clinically depressed, get treated; the gut is very sensitive to emotions. You are still here, so you have a purpose. Take care.

healerchic
Joined Sep 13, 2017

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