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Doesn't matter what's for dinner, I'm miserable all night and morning...


Tue, July 29, 2008 12:00 AM

Anyone else experience this? I'm going through a terrible UC flare. And during the afternoons, I seem to be okay. But between midnight and noon, I go to the bathroom at least 10 times. I wake up almost ever hour or two during the night. And then once I get up and moving, I'm miserable, crampy, and again, I'm going to the bathroom frequently.

I even ate just a couple sandwiches for dinner last night thinking that when I eat sandwiches for lunch, I'm okay. So I thought I might be safe overnight with that. No such luck. I'm almost more miserable this morning than I was yesterday morning.

FPO geminisunset
Joined Aug 4, 2008

Fri, August 15, 2008 12:00 AM

 Reply posted for geminisunset.

Hi there,

I just wanted to say that I know exactly how you feel. I'm going through that same thing right now. It's so exhausting. I'd give anything to sleep through the night right now. And I'm experiencing severe tenesmus right now, which just makes things even worse. Not only am I physically and psychologiclly tired, but my bowels are jut "pooped"...haha, couldn't resist.

FPO moogan83
Joined Aug 12, 2008

Sat, August 02, 2008 12:00 AM

 Reply posted for Sue.

Thanks for sharing your story with me. Things have not gotten any better. My GI admitted me to the hospital for 48 hours this past week to give me higher doses of steroids via an IV. I seemed to get a little better while being on the IV, but once I got back home and continued with the oral steriods, things got bad again. So now he wants to start me on Remicade. I'm hoping this helps. I've lost so much weight with this flare-up and I'm just drained of energy all of the time.

FPO geminisunset
Joined Aug 4, 2008

Tue, July 29, 2008 12:00 AM

 Reply posted for geminisunset.

This definately happened to me last year (I'm on my way again now too!) Anyway, before being hospitalized last May, I was up at least once an hour going to the bathroom and lots in the morning before work.  I worked in a preschool and seemed to be ok while I was there, but nighttime and mornings were aweful!  I even tryed fasting thinking that if I didn't eat, I'd have nothing to poop out, but even that didn't work.  My body was making so much mucus, even that was coming out every hour. I agree with the other comment, I don't think it's what you eat when you are in a bad flare, if the drugs aren't working for you, try something else.  I believe the remicaid is what turned it around for me.  I got 3 infustions last summer, May, June and August I think and I was completely symptom free until this May.  Funny, I did just read that the effects of remicaid may only last a year, it certainly did for me!  You should try something else and not let this go on any longer.  The day I was hospitalized I felt I was going to die and knew that was the only thing that could save me. My GI said I was his sickest patient he had last year and was suprised I didn't loose my colon.   Even the IV steroids didn't work, but I didn't realize how sick I was, how dehydrated and sleep deprived.  I have 2 kids, a husband, home and job that needed me so I just kept going.  You can't live like that.  Please go get more help now before it get worse.  Take Care, Sue 

FPO sue
Joined Jun 13, 2008

Tue, July 29, 2008 7:04 PM

 Reply posted for geminisunset.

Hi, my husband is going through a bad flare right now as well. His started back in March and it has been a mixture of good days/bad days.  He had been taking 4 grams of sulphasalazine, folic acid, iron, 60 mg prednisone, hydrocortisone enema, bentyl (for the cramping, but he says he doesn't know if that has helped) and now this past week his dr has added 6mp to his cocktail.   Last night was the first night he slept for 8 hours straight in a month!  He had tried eating "safe" foods such as oatmeal, turkey sandwiches, lactose free milk, etc and it didn't seem to matter. Today he had fast food so it seems like all logic is thrown out the window as today was a better than average day.  He has found that eating early seems to help and keeping fluids in him throughout the day. 

FPO kjmajor
Joined Jun 22, 2008

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