Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

A little bit about myself


Sat, November 28, 2009 1:00 AM

I've had chrons for about 15 years and I've tryed everything avaliable....nothing really works. I'm just tired of living with this.... Is there such a thing as cronic desease burn out?

maybe coming here will help..... just knowing I'm not alone...

hope to chat with everyone.

FPO jim
Joined Nov 28, 2009

Tue, December 01, 2009 10:53 PM

 Reply posted for Jim.

 

Every time that you think that you have reached bottom, just reach a little deeper. That is what you have to do. Its how you fight the fight that counts. Your wife will stand beside you as long as you look this thing square in the kisser and stand your ground. Don't give in one inch.

                                                Joe

FPO joe
Joined Oct 24, 2019

Sun, November 29, 2009 1:00 AM

 Reply posted for Jim.

Sorry you are in pain today......abscess...(ouch) definitely not fun!  

I think it is wonderful that you want to show appreciation to your wife.  We wives sometimes take a lot and get little in return so it is refreshing to hear a husband wanting to show appreciation in return.  Think about some of her interests??    Maybe pick up that new release her favorite author just released, or tickets to a holiday show if that is something she might like.   Knowing you have good and bad days, why not pick a good day and make a special date night.   Maybe dinner and a movie, but make it extra special and pick up a bouquet on your way home.   You don't have to spend an arm and a leg, just the time and the words of your appreciation for sticking by your side through good times and bad.

I wish you and your wife many, many more goood times.

Lizzies Mom 

FPO lizzies mom
Joined Sep 9, 2009

Sun, November 29, 2009 1:00 AM

 Reply posted for Jim.

This might sound odd, but I look at people with deseases like cancer and I envy them. Deseases like cancer come to an end....your either cursed...go into remission or you die. With chrons it never ends, it's an ongoing struggle 24 hours a day 7 days a week. It takes your life away from you..it controls your life and it unfortunetly it takes the life of love ones away as well. How my wife tolerates this is beyond me..she's amazing.

Normally I'm a fairly happy easy going guy but when I'm in pain as I am n ow ( anal absess ) I'm not nice to be around.

What can I do for my wife...how can I make this up to her...how can I thank her for being there and living this with me?

Jim

FPO jim
Joined Nov 28, 2009

Sun, November 29, 2009 1:00 AM

 Reply posted for Jim.

Hello

So nice of everyone to reply.....thank you!

FPO jim
Joined Nov 28, 2009

Sat, November 28, 2009 1:00 AM

 Reply posted for Jim.

welcome Jim...........you came to the right place.....just knowing that we are not alone is a help especially when we are down......and everyone with these issues are at some time or another.........we support each other.......I was diagnosed with colitis nearly 7 years ago..........felt so alone and embarassed so many times......found this site recently...wish I had found it earlier..........hope you can find some support and info here that will help you..............

FPO taw
Joined Oct 24, 2009

Sat, November 28, 2009 1:00 AM

 Reply posted for Jim.

Hi Jim,

You came to the right place.  This forum is great.  Lots of great people and so much useful info.  I am a parent of a 19 year old who was diagnosed with UC 3 years ago.  This forum has saved me from total panic.  My daughter comes on here every once in a while too and feels like she's not alone with UC.  She doesn't know anyone with it.  When she was in high school with it, she felt so alone.  She has a great doctor and is currently in remission and is applying to transfer to a 4 year college.  Welcome to the forum and looking forward to your posts.  I hope you feel better soon!!!!!

EZ

FPO ez
Joined Nov 9, 2008

Sat, November 28, 2009 1:00 AM

 Reply posted for Jim.

You are definitely not alone.   I think everybody at one point or another feels "burned out"......whether it be a patient, caregiver, friend, family member.   I am a mom of a CD patient who was sick from infancy yet un-diagnosed 'til 4 yrs of age.  It has been 6 yrs now and we have all had our share of ups and downs.   I think being a part of this community will be helpful to you for everybody is in a similar boat and can relate.   There is often very good advice given too.

Lizzies Mom

FPO lizzies mom
Joined Sep 9, 2009

Related Topics

IBD and trauma
Author Image Janeliza
Joined Apr 13, 2022

Hi all! I've had Crohn's since 2014 with m....

read more

Life Insurance?
Author Image Aperson1
Joined Dec 2, 2022

40 y.o. male looking to get life insurance.  ....

read more

IBD and exercise/sport
Author Image JS25
Joined Aug 14, 2023

This is my first post. I am 28 and I was diagnosed....

read more