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Hi all.  I have CD in my transverse/descending colon.  I have been on Lialdia with occassional entocorts to control my disease.  My flares have been getting closer together, so my GI and I are considering Methotrexate.  I'm too afraid to go on the biologics. 

 Reply posted for balance.

Well my story is still work in process but I'm doing very well these days.

I made major dietary and lifestyle changes and I have been able to reduce my meds and mainly stay in remission.  I had some downs but those downs helped me figure out what was causing my downs.  It would take me pages to write it all down so go to this link and read about it if you like.

http://www.ibsgroup.org/forums/index.php?showtopic=94551

Hang in there and good luck. 

 Reply posted for balance.

I've had Crohn's for the last thirty years, but my ups and downs aren't really worse than those of other people I've known. In spite of health problems, I've been able to hold down a good job for the last 20 years, I have a good marriage, and good friends. I know other people without Crhons who actually have it worse than I do, so I'm very thankful for what I do have.

Lately I've been using Humira which has kept the Crohn's symptoms down to a minimum. Watching what I eat, and making sure I get plenty of sleep helps. And keeping in touch with friends and loved ones makes a difference.

Sometimes it's easy to get frustrated and depressed with Crohn's.I get that way sometimes, and for a long time thought it was just me. Reading posts on this forum made me realize it was actually pretty common for Crohn's patients, which helped. Now when I feel that way I just say, "It's the Crohn's again" and wait it out. I keep telling myself it won't last, and I work to cheer myself up.

Reading something funny, or watching a funny movie helps sometimes, or at least something cheerful. You have to treat yourself well, and not give up. We're all in the same boat here, so don't think your're alone. We know how it feels, and know it can get better.

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Hello

Miserable and sad...I know lots of people who are perfectly healthy yet their miserable and sad. If only they knew how lucky they are.

What can I tell you?..this is it...the rest of your life..dealing with this....think of it as being part of who you are....savour the good moments..enjoy life when you can....hey this sound like advice I'd give to anyone.

don't kid yourself..no one lives a perfect life..healthy or not.

look at the positives..you get to come to this forum and meet some lovely people you wouldn't have met otherwise....get to met lots of nice nurses and doctors.

You learn about whats really important on life......

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Yes, there are "good" stories.   Well, as good I guess as they can be.

I'm not sure how closely you follow this forum, but I am the mom of a CD patient.  I'll give you the "Cliff Note" version not to bore you too much.

When my daughter was a new infant, I knew something was wrong.  The doctors blew it off again and again, probably thinking....this "new mom" is a narotic.  The thing was, I wasn't a first-time mom.   She was my second born and knew all these messy diapers weren't normal.  After several hospital visits, mis-diagnosis, she was finally diagnosed as having CD at Age 4.   Wow, talk about a shock!   What the heck was CD???  I never heard of it.  

Fast forward, now 6 YEARS later and we have all finally adjusted.  My daughter is a very smart, active girl who is part of a gymnastics team and is truly amazing.  To see her flip through the air so effortlessly, defying gravity.......and better yet, to see the smile on her face......is a true blessing for me.

Yes, she takes maintenance meds 3x a day, has to see a specialist every 3 months, bone scans annually, vision screenings, regular blood work, unique diet, but at the end of the day........she is having the time of her life!

I hope my daughter gives other "special bellies" some hope......you can too......have the time of your life!

All my best

Lizzies Mom

 Reply posted for Titan1.

I agree with you Titan1--- coming and going is fine--- this is a good place to visit when we are down in the dumps (NO one without IBD wants to hear about poop!), and my dog, who could be interested, doesn't speak english!!!

  So hang in there everyone----great place to vent especially when it all seems to be too much to deal with.

 Reply posted for wannabeucfree.

I agree whole heartedly with wannabefreeuc. People at the more severe end of the spectrum of any condition tend to gravitate and participate most on support forums. If someone is doing very well and doesn't need help or support they don't join and those who respond well tend to drop out as they don't need as much support or answers to questions. It's just the way it is.

 Reply posted for balance.

I think what happens when people do get better, is that they don't have the same need for the boards, so they disappear---  I was diagnosed in Oct; and have seen progressive (slow) improvement.  I am not "normal" yet- but things are SO much better. Hang in there-- track yourself, mood, diet, make sure you take your medication on time, get rest, exercise if you can, and try to eat as healthfully as you can.   Keep us posted on what happens, and good luck.. There is life after diagnosis, at least for some of us, and hopefully others with sucess will respond!

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I'm assuming since there have been at least 14 views and no responses that the answer is no, there are no good stories about people living "well" with this disease.  Now i'm even more sad....