Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Had 2 flares, stopped both in a week and I know why I had them.


Mon, December 14, 2009 1:00 AM

Hi everyone, I hope everyone is well as possible.  I know it can be hard but hang in there.

I find it hard to come to this forum because I see of all the drug treatment prescribed by doctors just masking the problem and not getting to the root of the problem.  I get discouraged.  I was once treated this way and never felt better until I made major dietary changes, lifestyle changes and read as much info about my UC as I could find.

I had been doing very well with just diet and lifestyle changes but I would only reduce my meds and could not get to med free.  Through heavy metal blood and hair analysis testing I found I had elevated levels of Mercury and Aluminum in my body.  I then started removing all sources of Mercury and Aluminum in my life.  I had my Silver (mercury) filling removed, removed all Teflon cookware, change to a aluminum free deodorant and baking soda…etc…etc.

After all my mercury filling were replaced with composites I tried to chelate.   I tried a Cilantro based heavy metal detox.  I did not know at the time that Cilantro will chelate mercury out of soft tissue and through the intestines.  BIG MISTAKE!  1 month later I started to flare.  Bleeding, cramping and diarrhea.  I stopped the detox and followed the diet and supplement protocols from the book “listen to your gut” by Jini Patel Thompson.  I was able to stop the flare in less than a week. 

FPO patman75
Joined Feb 8, 2009

Wed, January 31, 2024 1:53 AM

Reply posted for Cresswell4.

Metal, a versatile material with a rich history, has played a pivotal role in shaping industries and everyday life. From sturdy constructions to intricate artistry its adaptability knows no bounds. Exploring cutting-edge applications, like self-piercing rivet guns, showcases the continual evolution of metalworking techniques. For a deeper dive into this fascinating world, check out this informative article [url=https://questok.com/blog/the-application-and-maintenance-of-self-piercing-rivet-guns]https://www.questok.com/blog/the-application-and-maintenance-of-self-piercing-rivet-guns[/url].

FPO Cresswell4
Joined Dec 9, 2023

Wed, January 31, 2024 1:53 AM

Reply posted for patman75.

Metal, a versatile material with a rich history, has played a pivotal role in shaping industries and everyday life. From sturdy constructions to intricate artistry its adaptability knows no bounds. Exploring cutting-edge applications, like self-piercing rivet guns, showcases the continual evolution of metalworking techniques. For a deeper dive into this fascinating world, check out this informative article <a href="https://questok.com/blog/the-application-and-maintenance-of-self-piercing-rivet-guns">https://www.questok.com/blog/the-application-and-maintenance-of-self-piercing-rivet-guns</a>.

FPO Cresswell4
Joined Dec 9, 2023

Sun, December 20, 2009 1:00 AM

 Reply posted for patman75.

I'd be nervous about the EDTA. While it is used in some products like canned beans it's not the best thing to do, at least for me.


While it's true EDTA is a chelating agent it not only gets rid of mercury but just about every other mineral in your body including calcium, magnesium, phosphorus, iron and more. Since some people with Crohn's are already having problems conserving minerals especially if we're on prednisone, which causes you to not absorb many minerals, or when bleeding or just not absorbing foods to the max, we may start having problems with loss of minerals even without the EDTA. I think I'd be too nervous about using EDTA being a Cronnie.

FPO titan1
Joined Sep 1, 2008

Mon, December 14, 2009 1:00 AM

 Reply posted for patman75.

Part 2

About 1 month later a supplement packet that I was taking changed their formula.  I was avoiding a supplement that had Alpha Lipoic Acid (ALA) in it.  ALA chelates mercury from soft tissue as well and though the intestines.  They moved ALA from a supplement that I was avoiding to one that I was taking.  About 3 weeks later I started to have a HUGE flare.  I knew right away this was going to be bad.  I started myself on the Elemental Diet as called out in “listen to your gut”  The elemental diet was helping but then I read through all my supplements and found I was taking ALA.  I stopped taking the ALA and the flare stopped about 3 day later (1.5 weeks total).

After all that I have been able to get back to real food and I am doing very well.  1-2 BMs a day, all formed and no Diarrhea.   

Those 2 flares taught me that the Mercury in me has to come out.  But I have to do it smarter.  I found a doctor that specializes in mercury chelation using EDTA which binds to mercury in the blood and flushes it out in urine. 

If you want to read more go to this link.  Good info on this site as well.

http://www.ibsgroup.org/forums/index.php?showtopic=94551

Next year should be interesting.  If you have mercury fillings stay away from Cilantro and ALA.

Good health to all

 

FPO patman75
Joined Feb 8, 2009

Related Topics

IBD and trauma
Author Image Janeliza
Joined Apr 13, 2022

Hi all! I've had Crohn's since 2014 with m....

read more

Life Insurance?
Author Image Aperson1
Joined Dec 2, 2022

40 y.o. male looking to get life insurance.  ....

read more

After a year...
Author Image justL
Joined Jul 17, 2023

Hi , I'm L and I have been diagnosed with seve....

read more