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Hello All

I also wonder if it ever gets better with time so I have something to look forward to

 Reply posted for magonza8279.

I am brand new here, and I don't know that I can offer a whole lot of "advice". All I know, is that after this last stay in the hospital, I have felt fatigue unlike previous stays. After blood tests, my doctor told me that I was anemic. So, I got some iron and folic acid pills yesterday to see if it will help. It sounds simple, after all that you have been through, but it may help.

Good Luck!

 Reply posted for magonza8279.

Hello!  I totally understand how you are feeling!  I have no energy for anything.    I have a wonderful 6 year old who wants mom to play, and I have no desire.  I have Chron's and none of the doctors seem to help.  My iron is low, and that is all they say.  I take vitamins,and it still doesn't help.  Recently I started trying these "energy"patches. Precision3.com I think they are working some.  They may be worth a try for you.  If they don't work, I know someone who will buy them from u.  Let me know what you think.  I will talk to you anytime.1-815-541-0605.

Lynnette

 Reply posted for magonza8279.

The fatigue could also be emotional, have you seen a therapist about this?  I almost think that's a must, I sure am seeing a therapist to deal with my emotions about my loss of health! (I just got it last summer)

 Reply posted for bwebb.

Thank you all so much for taking the time to write back about this.  I appreciate all your thoughts and suggestions 

 Reply posted for magonza8279.

Fatigue...  When I am at my wit's end and just really ready to collapse, I have a funny little thing that helps.  It does not cure and it is totally a mental thing but it is my little trick.  My darling husband will take one look at me and say "Baby, we need to get some pineapple juice in you."  Pineapple juice helps me.  It gives me a little perk up.  It does not solve the problem. The liquid helps the dehydration, the natural sugar helps the energy, the vitamin C is just great, but the mental association is the biggest.  Pineapple juice brings back a cherished memory from childhood.  It also takes me to a beach in my mind.  This little thing gives me the perk up I need to carry on or to just smile and hug my hubby.  Baby steps, everyone, baby steps.  Find a little trick that will give you a boost.  Smiles make a difference and help ease stress.

Breezy

 Reply posted for Titan1.

Fatigue is so frustrating. I had a realization a few years ago that there's some level of fatigue that cannot always be treated and at times, you have to learn to just cope. Titan1, you really summarized my own feelings and observations about fatigue really well.  I think part of the fatigue we all feel is obviously part of the disease and the inflammation. Even if we're not in a flare, the disease and the meds reduce our energy levels. But the other part of the fatigue is also the stress that accompanies a chronic illness. There's legitimite stress and worry that comes from managing your life with a chronic illness and it's exhausting. When I'm not feeling well, I can't even put into words how tiring it is for me to "pretend" that I'm ok to be able to get through work and social interactions, to have to plan for bathroom breaks, access to appropriate foods, having a back up plan in case you get fatigued, doctor's visits, tests, etc. It's so much to manage, on top of life's typical stressors. I also make sure I'm hydrated.  I've noticed a connection between even minor dehydration and fatigue (especially if I'm having fevers). I drink at least two liters of water a day. I also do yoga/stretching or take short walks when I'm feeling super fatigued. I try to expose myself to sunlight for 10 or 15 min/day for Vitamin D. Take it easy on yourself - rest and get a good sleep routine but also find some time for friends. I plan quick dates with my friends for tea or a chat rather than a big night out or shopping, etc. I find massage helpful, too, b/c I suffer from joint inflammation. And don't hesitate to talk to someone supportive and set limits at work and with family and friends when you're just too tired.

 Reply posted for magonza8279.

I feel your pain!  I was diagnosed with CD in 2001 and have yet to find something that helps my fatigue.  I have good days, and I have bad days, but most of the time, I just feel tired.  I think the most important thing to remember is that your body is fighting a disease (whether or not you are in remission) on a daily basis.  Because of this, we feel tired. 

Just remember to take care of yourself, and most importantly, learn when you need to "take a break".  Whatever you do, don't give up hope!

 Reply posted for magonza8279.

Oh, I hear you on the fatigue. I think often the fatigue comes from the chronic inflammation, we may have some even though we don't have big symptoms. I think the underlying inflammation is a big factor, at least with me.

 Reply posted for magonza8279.

Wish you luck on your fatigue, I take 6mp and works good for my almost never ending gut pain.  I work night shift not to many people understand how tired a person can get when they spend almost most of their day on the toilet.  Stay away from the Rx-Abiene sure it works to put you asleep but it'll upset your stomach and change your mood.  I'm still trying to stop using the med.