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I have no idea what  to eat.  No grains, dairy, seeds, fruit juices, sugar, red meat, nuts ect..

 Reply posted for alivein315.

I have been on a fairly regimented diet after being diagnosed with Crohn's some 39 years ago.  Meaning, no nuts, sweet corn, beans, and other foods that don't break down easily.  Just 3 years ago I was also diagnosed with Celiac Disease (I think that's how it's spelled).  Crohn's disease and Celiac have pretty much the same symptoms (gas, smelly stools, etc.).  So, outside of a blood test, it's real hard to determine if you have it or not. Anyway a quick blood test showed I did have Celiac, and had it for... I don't know how long.  So in addition to the other list of food can't haves, I've added more foods, specifically, anything with wheat or gluton in it.  Try reading labels and find out how many foods exclude gluton or wheat.  Another big one I had to drop is beer for obvious reason.  Barley malt is akin to gluton.  Come to think of it... beer never seemed to go over well with me anyway.  So, some of you might want to get checked for Celiac.  It seems to go along with Crohn's for some reason.

 Reply posted for alivein315.

The last ten years have been an education in nutrition for me...... The low residue diet recommended by my second GI was awful.... and the Nutritionist that I saw after was only marginally better.  I have had to figure it out from a lot of my own research and experimentation.  Iwould recommend starting a health journal and record every day what you eat, drink, supplements and medications, how much, at what time, and any symptoms you experience.  If you want to start calm- reduce to a no residue diet like broth, eggs, ensure, meat protein, tofu, miso soup.....give your gut a rest, and slowly add one item at a time beginning with low residue.  small amounts of soluble fiber only, cooked and/or pureed. no raw veggies, nuts or whole grains. document how you feel.  be wary of wheat/ dairy, these are common triggers.  If you don't know a lot about soluble and insoluble fiber, a book that helped me a lot was the cookbook" Eating for IBS" it taught me a lot about fiber and the personal path to food and your health. The health journal can help you also with your doctors, or medical providers, even be used as a tool with counseling.

 Reply posted for alivein315.

I have banana and whole wheat toast everyday pepperidge farms soft. With glass of OJ lunch is either deli all natuaral chicken or tuna I use light mayo I do drink coffee with powder non dairy creamer. For dinner I eat chicken or fish, salads, rice. I eat soft shellchicken tacos alot Peas seem to bother me, as well as corn. and brocolli unless it is super fresh, firm stems. can't eat leftover brocolli. All I drink throughout the day is water. I currently take Colazal. we are all somewhat differant, over time you relize what your system can tolerate.

Good luck

 Reply posted for alivein315.

thankyou everyone!! All the suggestions were very much appreciated.   

 Reply posted for charbren.

remicade is a good drug but it stop working after a year

ask your dr about humria it better

i have really bad cd and i been having it for 23 years

i am 31 if you want to call me you can 618 3340932

 Reply posted for alivein315.

mybe you need to change meds

i eat what ever ask your dr about humira it a good drug

 Reply posted for alivein315.

I have had nearly 6 feet of my small intestine removed and have had diet problems most of my life. The most luck I have had was when I started eating certain whole grains and tuna and salmon. Cooked oatmeal for breakfast helped me a great deal as did switching to 100 percent whole wheat bread (not the stuff that is basically white bread with a caramel coloring). However, I had to experiment with 3 or 4 brands of whole wheat bread to find the one that worked for me. Also be sure to read all ingredient labels and look for the word whey. If you find whey (or a milk product) listed as an ingredient, you may want to skip buying it. The only milk product I can eat is yogurt but only if I take an acidophilus capsule (or other Probiotic) at the same time I consume the yogurt. If you decided to try cooked oatmeal, I would try eating just a little the first time and see if you tolerate it okay. The same goes for eating any whole grains - start with a small amount at first to see how you tolerate it. Other kinds of fiber cause problems for me except for whole grain wheat and oats. Every person with Crohn's is different and it typically requires some  experimenting to find your comfort foods. Please keep a positive attitude and I wish you the best of luck as I have been where you are now. Things can indeed get better.

Severe Crohn's - WHAT DO I EAT???

 My

20-year old (at the time) stepson was diagnosed with Ulcerative Colitis in

2007.  After months of different medical treatments, and little if any

relief, in August 2008, he was admitted to the hospital with what the doctors

described as being among the top 5% of worst cases they had ever seen.

 After 3 weeks in the hospital, and on the brink of death, the only two

options he was given by the doctors were Remicade or proctocolectomy (removal

of the colon and rectum).

 After being told repeatedly by doctors that

diet has no effect whatsoever on UC (a part of the digestive system,

nonetheless), my husband refused to accept that claim and finally found a way

to get his son healed without medication or surgery. This regimen has healed

thousands of Colitis and Crohn’s patients all over the world for 20 years! 

 We spent the next 2 weeks weaning my

step-son off of the medications and drips (he had to hide his medications at

times because the doctors refused to work with him in this regimen).  He followed

the proposed regimen of this system and at the end of those two weeks, he was

finally released from his 5-week stay in the hospital when his visits to the

bathroom went from 20 per day to 2 per day!!!!

 One week later, and on zero medications,

the results of his next rectal scope showed that his colon had completely

healed other than one polyp which showed a brand new surface coming up behind

it.

 Unfortunately,

my stepson has since come away from the diet because he does not like fruit and

vegetables.  He has

thus, unfortunately, had a number of hospital visits since, numerous temporary

relief medications and is presently awaiting the start of the Remicade regimen

in spite of the horrendous side effects. 

 Reply posted for alivein315.

Hi alivein315,

I eat bananas, white rice, and baked potatoes when I feel really sick.  Chicken broth is good with rice and peas as well.  I'm sorry you're feeling so sick.  Hope this helps.

 Reply posted for alanschachter.

Add some  frozen pineapple or mango and you are in tropical paradise.  Smoothies from coconut milk are my favorite warm weather breakfast on the go gos! I have already burned out 1 smoothie maker in 2 years!

Breezy

 Reply posted for alivein315.

I've learned to work wonders with a blender... it was hard, when I stopped dairy too, but I've managed. So, it sounds gross, but when you're starving, it's good:

Smoothie: canned pumpkin, unsweetened applesauce,coconut milk (or vanilla rice or soy milk), protein powder, and L-glutamine powder.

I  was able to put a lot of lost weight back on by using (non-dairy) coconut ice cream, yum yum.

Can you have eggs? Soft boiled are easy to digest.

White rice cooked in cocunut milk, with ginger. Fish is great too.

 Reply posted for alanschachter.

thankyou!  yes, i made the soup atthe beginning of the week.  It came out yummy and i was able to tolerate it.