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sclerosing cholangitis

Wed, November 17, 2010 4:55 PM

I am 28 yr old female and I have been fighting with UC for 10 yrs now . I was wondering if Anyone with Ulcerative colitis been diagnosed with sclerosing cholangitis? I am going in for a CT test to have this checked out. My liver enzymes have been climbing high my last 3 lab draws and my pee turned a dark brown on sunday. My doctor seems very concerned but I've never heard of it. She kind of explained it to me but i wanted to know if there was in anyone else out there that can shed some patient to patient light on it. THanks

sassytmw
Joined Aug 26, 2009

Wed, December 01, 2010 12:36 PM

Reply posted for Crohney Baloney.

Primary Schlerosing Cholangitis is often related to ulcerative colitis, but not to Chrohn's.

PSC can cause liver cirrhosis (liver scarring), the same thing that may be present in some alcohol abuse people. This is bad because blood is cleaned/detoxified when it flows through your liver; cirrhosis is blood flowing through scar tissue rather than flowing through something like a sponge.

For Colitis, around 5-10% of colitis people have PSC, so it's somewhat uncommon, but still something good to check for. On the flipside, MOST people with PSC (around 70-80%) also have UC; so probably in a GI office, the doc would be used to seeing PSC people with UC, although generally just because you have UC does not mean you'll also get PSC.

Live scarring (cirrhosis) would take a number of years and is definitely not something that would come up, and become urgent, nearly as fast as a possible UC/Crohns complication.

rckymtn
Joined Dec 1, 2010

Mon, November 29, 2010 12:58 PM

Reply posted for sassytmw.

i was diagnosed with primary sclerosing cholangitis and crohn's disease at the same time, via colonoscopy (1999). thankfully, the psc has only manifested through numbers on a piece of paper (alt, alk phosphotase and other enzyme levels), and my crohn's became active two years ago. my only advice at this juncture is to be patient and be good to yourself. also, it's important to like and trust your doctors. i see a gastroenterologist and liver specialist. the first gastro i went to was very "doom and gloom," and pretty much told me i had five years or so before my liver would fail. that was about eight years ago, and not much has changed in that regard. the only big difference is that i no longer pay that *** to scare me out of my wits. i've seen two other gis since then, and both made me feel a lot better (and accurately told me the crohn's was the more immediate problem.

crohney baloney
Joined Nov 26, 2010

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