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A poem that I wrote that anyone with crohns WILL understand!!!!! Please READ respond as well...


Mon, April 28, 2008 3:38 PM

Have you ever felt my pain?

Have you ever felt this hurt?

Have you ever wiped my tears?

Have you ever measured the pains worth?

Have you ever sat in front of your food and prayed for it not to hurt?

Have you looked pass the pupils to the thoughts array?

Have you ever tasted the smell of your favorite foods, for it to be taken away?

Have you ever just wanted the pain to go away?

Have you ever wished you could go back, to when there was no pain?

Have you ever hated the comments some have made?

Have you ever been afraid to eat, and ask yourself why?

Have you ever heard the saying you’ll be just fine?

Have you ever had pain just to sneeze?

Have you ever met anyone with Crohn’s Disease?

FPO randy04
Joined Jan 26, 2009

Wed, May 21, 2008 12:00 AM

 Reply posted for Randy04.

This disease is so heartbreaking.  I understand fully.  I hate wondering if my food will cause me pain.  And I hate being pre-diabetic and having to take medication that makes my crohn's worse and not having the endocrinologist OR the gastro doc understand what I am going through.

 Marcie

FPO marcie
Joined Oct 30, 2008

Fri, May 09, 2008 1:17 PM

 Reply posted for Randy04.

Thank you for writing that poem!  I feel your pain as I feel my sixteen year old daughter's pain. I only need to look into her eyes to know. I cry myself to sleep, I panic and become an overbearing, overprotective, psycho mom!  I think that my daughter hides her pain from me at times because it hurts her to know that it hurts me. It's a horrible and ungodly experience for anyone to go through. I don't believe that anyone really "gets it" unless they have experienced it. My daughter has been afraid to go places, has missed two months of school, spent almost the same amount of time in the hospital, is afraid to work, afraid to date. It's an embarassing disease and there are few people to talk to....especially for a teenager. 90% of Shauna's friends think she has generic stomach problems. Only her two very best friends know the depth of her illness. She has Crohn's and colitis. I'm glad that this website exists, education is so important in the battle. Thank you again for writing that poem. It's true, sad and beautiful!

FPO rachelg71
Joined May 9, 2008

Thu, May 01, 2008 3:37 PM

 Reply posted for Randy04.

Yes I understand your pain. I've had Crohn's for 33years. It is hard and people do treat you different. You put your feelings into words that we all feel...thank-you.

FPO elesimp
Joined May 1, 2008

Thu, May 01, 2008 12:00 AM

 Reply posted for Randy04.

I have colitis but this still applies. I feel the pain all the time. Every day i live with it. And i know every public restroom in the state of Pennsylvania if it makes you feel any better :) lol!

This is a nice poem ... i know what its liek to feel so beaten down by this disease. No one else can possibly understand the pain, and what we have to go through, the fear, the wanting to eat .... the sickness.

Hang in there!
Brenda

FPO ganesha
Joined Apr 24, 2008

Tue, April 29, 2008 5:25 PM

 Reply posted for Geanie.

Oh I can relate! I am forever hearing people say I am the healthiest looking sick person they have ever seen!!!!!! I mean what should I do? live my life laying around feeling sorry for myself? I am a 34 year old mother of a 5year old and a 2 1/2 year old and I need to be a mom to them...so if I go without eating just so I can leave the house to take them to a party or to school then I will do it! It must be bad if I know every public restroom in the state of South Carolina!

 

FPO yellie25
Joined Apr 29, 2008

Tue, April 29, 2008 11:57 AM

 Reply posted for Randy04.

 I HAVE, I HAVE and the pain goes on ... and no one knows... YOU LOOK FINE I HATE when people say that.... YOU DON'T LOOK SICK....... step into my life, I'll trade my body for yours!

 Thank you, you put the feelings into words....

FPO geanie
Joined Mar 17, 2008

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