Community Forum

So its 4:30 a.m. where I am, and I've decided that once again, I'm going to have to give up on trying to get any sleep. Woo Hoo to starting a 12 hour work day in 2 and a half hours.

I think I'm done trying to find a GI doc that can fix me with meds, instead I'm going to find a good looking one who makes decent money, and marry him so that I don't have to worry about working long shifts during my freakin flare ups!!!!!!!!!!!!!!!!

OH Lordy, don't mind me. I'm on my 4th sleepless night here.

 Reply posted for worried mom.

Thanks for the reassurance.  Sometimes I get on my own nerves with all of this research, but like you said, knowledge is power.  I don't know why my husband suddenly thought I was being obsessive.  He has overall been very supportive, but I don't think he's doing enough to understand what I'm going through.  You're right about sitting down to talk.  I think that might help him understand just how serious this is, and how much it impacts my life.  Sometimes I think he understands, and other times I wonder why he seems so indifferent about the whole thing.  I hope I'm not bad mouthing him!  He is a really great husband and my best friend.  I guess I'm just looking for more support.  That is one of the reasons as to why I joined this forum.  All of you have been a great help to me, so thank you!  I really appreciate it.

 Reply posted for kristinnicole.

Hey we ALL know in this household whats it's like to have Crohns /Colitis.  It's not me, nor my husband, nor my daughter who has IBD, but it's our son.  Even though our son has it, it affects all of us....especially me cause I'm his mom....I have spent many a sleepness night looking up everything about the disease.  I totally drive my husband bonkers with this "story" or that "treatment" I read about....but hey, I need to figure out whats gonna be best for our son.  Yes, the doctor treats him, but I want to be informed myself to keep asking the questions I feel are important.  So it's ok to be "venting again" never ending.  And to Kristin, you need to sit with your husband and really talk to him....let him know what a scary disease this is and how serious it can be....it doesn't magically just go away and you do need him to support you.....your in it together whether he realizes it or not yet.  There have been many many times my husband and I have gotten frustrated with one another since our sons diagnosis....because sometimes I'm a little obsessed with Google and looking stuff up.....but he does realize I have alot of info in this worried mind of mine.  Knowledge is power and we have to learn as we go in this.  Our son is going through a flare right now....so here I am worried unable to sleep.  I love this site....it makes all of us feel not so alone in this fight.

 Reply posted for NeverEnding.

It's okay to vent!  In fact, I need to vent, too.  I was diagnosed with Crohn's about a month and a half ago, and since then I've been doing a lot of reading and research on this disease.  I've told my husband about a lot of the things I've learned.  I told him if I was being obsessive or annoying to just let me know.  Well, he did let me know about a week later.  This was on Thursday, and I haven't said anything about it to him since then.  I was so hurt and mad that he would actually say I'm being obsessive after he had reassured me that I wasn't, and that he understood.  This is my life!  I don't mean that's all I am- this disease- but I need to know about it so I can take the best possible care of myself.  There have been times when I've woken up at night with pain and couldn't get back to sleep, had to leave work early or miss completely (and worry that they'll think I'm irresponsible), and I've actually had a couple of "accidents" too.  It's really frustrating that I feel I can't share my concerns with him know without worrying that I'll annoy him. 

 Reply posted for NeverEnding.

it doesnt end.

there is simply no answer for many of us out there.

it was digestive disorders week last week here in chicago. my doctor was one of the main "attractions" to the show that brought gi's from around the country.

my hope from this conference: we know how to fix you brandon!!!

to my utter disappointment, there is nothing new to report.

i have to be completely undesirable to my doctor. nothing worse than a patient who doesnt get better...no matter what we do to him or put him on.

my only hope is that my children will be fortunate enough to live in a world where this *** doesnt exist on earth