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Need tips on applyiance with difficult stoma.

Fri, May 02, 2008 11:42 AM

Hi my name is Arnette and have had chrons for over 20 years and have had an Ileostomy for the past 18 years. It was the best choice I ever made. The gastro had initally hoped to reconnect the bowle but have had several surgeries since and one reconstruction of the ostomy. For 16 years I loved my ostomy and use to change appliances once a week and had very few instances with leakages.

In 2005, I had a blockage and my ostomy was re-constructed. My Oust is located at the bottom and is even with the skin. I have allergies to the glue for ostomy pouches with the exception of Cymed. Now my appliance does not seal correctly and have multiple instances where I have had to change my appliance and/or clothing. It is embarrasing when it happens at work or in any public place. Does any one else share this frustration and can anyone share their techniques in securing difficult ostomys?

arnette
Joined Apr 8, 2008

Sat, May 17, 2008 12:00 AM

Reply posted for Schmoball.

Thanks for the tips, they are very helpful.

arnette
Joined Apr 8, 2008

Thu, May 15, 2008 10:20 PM

Reply posted for arnette.

Hello, First timer here so I'll try to be short. I have only had my illi, for 7 years but prefer the econ seal from convatec. After 2 pregnacies and five surgeries, while pregnant, it was the only thing that has worked. And not perfectly but better than anything else. My stoma expands and decreases so significantly that it is to hard to use paste. I try to act preventivly. I used to say all I needed was in my diaper bag and it was the truth. From sented bags for dirty diapers to sensitive wipes. I've used alternative methods for almost every type of unpredictable situation. Some creative ways to get through the leaks until you are able to get where you can change. I've actually used a maxi pad absorbancy side over the leak. it stays put because of the sticky side. And they are designed to cover odor so bonus there. During work where it was close the shop and tell everyone I hve an illi or deal with the leak it held for three hours. The skin irritaion was so minimal. Hope this helps. I've also tried a flexible wafer it felt funny during the application but worked like a charm.

schmoball
Joined May 15, 2008

Wed, May 14, 2008 2:55 PM

Reply posted for megano.

I have been there and done that. Everytime i loose or gain five bls i have probs. Have you tried hollister rings that are convex? i had tried everything else this works the best for me. It sucks, but it is justsomethings that happens, for me. I have to change my appliance in the morning, when i do not have a lot of output or i can guarenttee a leak. it is a formula that you will just have to learn. i understand cause i am allergic to lots of stuff

bug
Joined May 14, 2008

Tue, May 06, 2008 12:00 AM

Reply posted for arnette.

I also have an ileostomy. I got it 2 1/2 years ago when my ulcerative colitis got out of control when I got pregnant. I don't have any specific tips for your situation, but thought you might want to know about the UOAA (united ostomy association of America). Their main website is uoaa.org, and they have message boards on there that lots of people use. There are always people asking questions like yours and getting lots of responses. I just thought you might be interested since it seems that people on here aren't responding.

megano
Joined Apr 23, 2008

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