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Scared silly about changing treatment.


Mon, July 28, 2014 11:34 PM

 Well, today I was just discharged from the hospital from another flare up.  When I was diagnosed in 2005, I put all my trust in a highly competent GI doc.  He has a great reputation among friends I know, who are RNs at local hospitals, and among some of his patients I met at CCFA support group meetings.  From then until now I have been treated with 5-ASA and steroids.  In 2011 I changed health insurance providers, because my employer offers only one choice for group health insurance.  I had to go with a new GI doc, as my coverage is a rather closed system HMO.  This doc, very abruptly was going to switch my treatment to 6-MP.  While the presentation was abrupt and pushy, it was not forced on me.  Now my flare ups are becoming more frequent, and it 's becoming more apparent that the switch to 6-MP or biologics needs to be made.  After reading the side effects, cancer, infection, liver scaring, pancreatitis, and the like has me SCARED SILLY!!!   I'm scared I'm going to end up looking The Swamp Thing if there is any mold or mildew in the shower or dry wall of the aging house wherein I live should I start with this stuff.  I don't know what to do!  frown

FPO milesdei
Joined Jul 28, 2014

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