Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

My life !!!!😔 with crohn


Fri, August 01, 2014 5:42 PM

my name is Daniuska began to be sick and lose weight all that was wrong I fell eating always had to go to the bathroom or vomiting was so bad I decided to go to the doctor they never find anything I did the test and AIDS that but everything was fine still had lost good weight I was home for a long time the symptoms were stronger not eat how come to have anorexia and bulimia reaches the weight of 50 pounds to my 21 years I felt so bad I had to go to hospital emergency and that put me in ICU why they are super delicate my heart was not working so skinny it was from there my doctor said to use HUMIRA use it for a year I helped a lot but I was very depressed and wanted to die and kill and no longer live. I had a change of insurance and the hill hospital and everything was so confusing that I had to stop HUMIRA since November 2013 I'm out of medication I'm home without treatment only with pills to avoid the pain my insurance does not pay for my treatment I feel so bad I'm afraid to die in my house I have a gastroenterologist Dr. He send me to do all studies but the truth would not see the improvement itself roared ose nothing but the truth only I have crohn depression I feel alone I can not imagine my family what sorry please help me at least with my doctors I am at home with severe pains in NY Brooklyn have I crohn from February 7, 2012 for Today are two years with the disease to live well is horrible not want to live like I only have 23 years and have no friends, my family is rare not imagine what I'm going through them live in their own world. God bless you bye 😔

FPO daniuska23
Joined Aug 1, 2014

Sun, August 03, 2014 6:52 PM

 Reply posted for daniuska23.

Hi. I know how it feels to be alone and dealing w this illness. You have to stay positive, manage what u eat and excerise to deal w the stress. Really hope u feel better.

FPO holdontofaith
Joined Jan 30, 2014

Sun, August 03, 2014 6:52 PM

 Reply posted for daniuska23.

Hi. I know how it feels to be alone and dealing w this illness. You have to stay positive, manage what u eat and excerise to deal w the stress. Really hope u feel better.

FPO holdontofaith
Joined Jan 30, 2014

Related Topics

Feeling Alone with my UP ...
Author Image BeauutifulChaos
Joined Feb 17, 2022

I was diagnosed in October of 2020 with Ulcerative....

read more

Stunned by how much this ...
Author Image Alrightalright
Joined Sep 11, 2021



read more