I don't have an IBD but my 6 year old son does. He was diagnosed with ulcerative colitis when he was 3. Two months after he was diagnosed he had toxic megacolon. Since then he pretty much has been on prednisone and pentasa. We tried immuran but it caused pancreatitis. After trying with one doctor for 2 years we switched. Our new doctor decided to try methotrexate. I thought for sure that it was working. It now appears that it isn't. I am just tried of the prednisone. I just want him to feel well. It is so hard not being able to make him better. It is hard to keep giving him pills that seem to do nothing. I know I probably seem silly but I am just tired.
Reply posted for arraynor.
My thoughts and prayers are with you, I felt I was unlucky to have UC at such a young age (I was diagnosed when I was in the 7th grade). It makes me cry to think such a young child is already dealing with such a crummy disease! Be strong and remember we are thinking of you and your family!
Reply posted for arraynor.
There is nothing silly about your frustration, as parents we would gladly take the disease upon ourselves if we could. The hardest thing in the world is seeing them suffer, and not being able to make it better. I know as a prent of an 11 year old daughter DX CD 2 years ago. I am not sure I have had full 8 hrs of sleep since. I know this does not help but hopefully you can see you are not alone, and you are in my prayers.
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