Hello,
I'm a 20 year old student from Croatia. I was diagnosed with UC in 2013 and since then I was never in a remission. They tried with few types of medication and none of them worked. The latest medication my doctor requested was Humira. I really hoped it would give me some kind of result and it did at the very beginning, but now,after 8 weeks, it seems like it's doing more damage than good. Couple weeks ago, bad flare ups began and I have colonoscopy schedlured soon.
Right now I'm struggling with staying positive and not losing hope that some medication will work.I feel so tired and sad all the time and plus I have terrible mood-swings from the medication. I can't go too far from the house, because of the constant need for toilet. I sometimes feel like a burden to people around me, because there are so many ways in which this sickness affects our lifes that the people close to me can't really understand.
Any advice on how you manage sadness or depressed feeling with some type of activities or what helps you distract yourselfs when you have free time, because lately I don't feel like doing anything, but laying in bed.
Thank you for any feedback!
Reply posted for akr008.
I'd highly reccomend going to therapy. I got to a therapist and a psychiatrist and it really helps me. I take an antidepressent. it is still hard though but I wouldn't be able to manage without both of them! I am thinking a support group would also help me to so i'm looking for one that is relevent for me.
Reply posted for akr008.
Hey, I did think about it, but I somehow never decided to see one.
Thank you for replying to me and for your advice, I will try to find one in my country
and give it a try.
Reply posted for Klara.
I'm sorry you've been struggling through medications. Have you looked into seeing a therapist? Specifically someone who specializes in chronic illness? I've found that at my darkest times this was helpful even though I really didn't want to go. Best of luck.
I was diagnosed in October of 2020 with Ulcerative....
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