Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

confusion and pain


Sat, January 03, 2009 1:00 PM

Everytime I try a new medicine and it doesn't work, my doc says "well if this doesn't work we will talk surgery" and every time he puts me on a medicine. I've taken everything I can take and nothing is working. Today I had to go to the ER because I was sooooo dehydrated and cramping like crazy. I called all over the city and 3 hospitals and couldn't talk to him because he wasn't in office and won't be until Monday. Laying on that gurney made he think about all of the meds I've tried and how long I have dealt with this and how many trips to the ER and the docs office and labs that I have made. It is aggervating and I need to do something especially because of my 2 baby boys.The doc is confused and I am in pain. I don't know how to deal with it anymore. 12 years is long enough. My 2 boys (3 years and 6 months) need a mom who isn't always on the couch or in the bathroom. I am ready to rip my hair out! What about you guys?

FPO tarheelmama
Joined Sep 9, 2008

Sun, January 04, 2009 8:32 PM

 Reply posted for tarheelmama.

Hi princess here'

I was were you are at know when my 2 children were little it was very difficult. I tried so hard to do it all. And i baseicly did My Husban worked alot of hours so i was basicly on my own for the majority of the day. I just keep telling myself tomarrows another day if things did not get done I slept when they napped or went to nersery school. and made friends with moms that were home allday like me they Knew my situation and were willing to help when needed. it took a hospital stay to finialy except there offer. Some times i have relized even know that my children are 12 and 15 I ask the dance moms to help with rides when i am haveing a bad bathoom day. I do recipacate and they know im not takeing advantage of them. I would tell my kids when i was very sick mommy needs a time out to day and we will be staying home i would plan art prodjects for them to work on and a movie in the afternoon to this day my children truly understand my illness and my good days and bad days. I never hide my chrons from them. I feel as a young mother you realy need a good support system in play when you are realy tired and in the powder room allday There was many a days i cried and felt usless and a terrible mom but looking back i was a great mom and still am. Also may i suggest a ll or 12 yr old to come over and play with the children that was a life saver expecially during the summer.we call them Mothers Helper I would have 3 come every day during the week and would pay them 3.00 for 2-3 hours and my kids looked forward to seeing the girls.

Sincerly,

Princess 

FPO princess
Joined Oct 24, 2008

Sat, January 03, 2009 8:11 PM

 Reply posted for tarheelmama.

I am so sorry you are feeling so bad.  My baby boys are 4 and almost 2- and I understand that you just want to be a mom and take care of your boys!  Sometimes i can't even think about it becuase I think about all the things I am afraid I am going to miss in their lives becasue of this.  Friends and family try to understand- but they can't really.  I am scared to eat now - but I do - because I am so afraid of going back to the hospital.  I hope you found some relief - we have to stick together-hang in there- I know how hard it is!

FPO asohn
Joined Dec 22, 2008

Related Topics

Feeling Alone with my UP ...
Author Image BeauutifulChaos
Joined Feb 17, 2022

I was diagnosed in October of 2020 with Ulcerative....

read more

Stunned by how much this ...
Author Image Alrightalright
Joined Sep 11, 2021



read more

Navigating Challenges and...
Author Image heniersometch
Joined May 9, 2024

Nursing forming affiliations wrap a wide pack of h....

read more