Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Just need to vent


Thu, March 12, 2009 12:00 AM

It's been a trying day and actually, I've been in attack mode since last Friday.  (Attack = abd pain and bathroom runs constantly; Flare up - one or two runs to the bathroom and I'm fine.)

It's been awhile since I've had an attack and it is knocking my socks off.  Anything that I eat goes straight through me.  I am going back on the BRAT diet (bananas, rice, applesauce and toast) to see if it will quiet things down, and I can manage saltine crackers a few times throughout the day. 

I had the MRI done on both legs, each leg taking approx 25 mins to do, and when I got up from the machine, the pain in my legs was horrible.  My left leg could hardly tolerate the pain. 

I've lost a total of 20lbs and I swear if I keep this up, I'll look anorexic in another month.  I am drinking water so as not to dehydrate myself and once a day, apple juice (no sugar added). 

I'm fighting the powers that be at work, I have a doctor's note saying I have to be excused to use the restroom more then the average person and they have no clue how I am to do this.  The lady I caregive for has the mother of all colds going around - she's barking now she's got it good and seeing the doctor tomorrow.  The animals keep me busy, she keeps me busy, the house keeps me busy, work keeps me busy, I'm just about ready to collapse. 

To those of you who have these attacks for months on end, I send to you all the positive healing energy I can muster up here, I simply don't know how you live with it.  I am hoping mine will calm down here in a day or so.  My fingers are crossed. 

It simply has to get easier.  Doesn't it?

FPO aca11
Joined Mar 3, 2009

Sun, March 22, 2009 4:43 PM

 Reply posted for ACA11.

Hi.

Sorry you are in "attack mode".

I avoid juices, pre-packaged processed, and prepared canned foods for a number of reasons, including those related to UC. They make me weak and sick.  I recall having lost 25 pounds due to UC and looking quite skeletal! Last year I lost 11 pounds, but the prednisone helped me regain it and more...

Do you have a registered dietitian? Mine made the BRAT diet substantial.

I hope you feel better soon.

FPO anonymouse1
Joined Mar 22, 2009

Mon, March 16, 2009 12:00 AM

 Reply posted for patman75.

Oh thank you so much.  I have been able to do canned chicken noodle sour also, but when it is the main staple in your diet for days on end, ya get a little tired of it, yanno?

I am going to make this up this weekend.  It sounds more like you are only cooking the chicken for the smushed up chicken, but I may put some angel hair pasta or a noodle of some sort and make a full fledge chicken noodle soup out of it with the veggies and herbs. 

My f/u from the MRI got pushed up to this Wed and I see my GI doctor (not PA) on Friday.  I'm petrified on both cases.  I'm sure this isn't helping my insides much either. 

Again, Patman75, thank you so very much.

FPO aca11
Joined Mar 3, 2009

Mon, March 16, 2009 12:00 AM

 Reply posted for ACA11.

Instead of the brat diet, try this for a while.

Chicken soup for bad days

http://www.ibsgroup.org/forums/index.php?showtopic=28551

If I would of stuck to the brat diet or low residue diet I would not be doing well at all.

Good luck on pulling out of this flare.

FPO patman75
Joined Feb 8, 2009

Thu, March 12, 2009 8:11 PM

 Reply posted for JE.

Thanks, JE.  I'm just hoping it's not the big "C" in my bones.  It runs in the family, along with Diabetes, heart disease and Parkison's.  My parents are both deceased, so my rock right now is my Aunt and she feeds me humor every time I call and it helps. 

I think once we find out what is going on the legs, we do the last test and that is a capsule endoscopy - that's where I swallow a pill with a camera in it and it takes pics all throughout my intestinal tract.  That's how they diagnosed the lesions (ulcers) in my full intestinal tract the last time and I think somewhere along the way, we have a piece of intestine that is not cooperating. 

Let's keep our fingers and toes and eyes crossed I don't get a call from the doc's office before next Friday, when I'm scheduled to get my results of the MRIs.  That's my biggest fear right now.

On a side note, I wish I were a millionaire.  I would send each and every one of you a plane ticket to a remote spot where we can laugh, giggle, cry and share in our life's journey with each other.  In the meantime, I'll keep playing the lottery and hope for the best!

FPO aca11
Joined Mar 3, 2009

Thu, March 12, 2009 1:08 PM

 Reply posted for ACA11.

Yes.  It does get easier.  And you sound like a spunky person!  I know you'll handle this with grace and good humor!

FPO je
Joined Dec 3, 2008

Related Topics

Feeling Alone with my UP ...
Author Image BeauutifulChaos
Joined Feb 17, 2022

I was diagnosed in October of 2020 with Ulcerative....

read more

Stunned by how much this ...
Author Image Alrightalright
Joined Sep 11, 2021



read more

Buying Crystal Meth Onlin...
Author Image borislane123
Joined Apr 28, 2024

Buy Crystal Meth Online, Buying Crystal Meth Onlin....

read more