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Lonely


Thu, November 26, 2009 5:04 PM

Finally joined after reading so many stories that are very similar to mine.  I was diagnosed with UC in 2000. I have had more years of remission one lasting 4 years, the other 3years.  My last flare up began Christmas last year and lasted until July. I thought it was over for a while, and to my dismay it came back with vengeance the first of November.  I was just sitting here alone while my family is having Thanksgiving without me.  My UC is keeping me home today. I just feel lonely and sad at the moment. Staying positive has been a challenge this year! I just want control over my body and I am not getting it. 

FPO missliss
Joined Nov 26, 2009

Sun, December 13, 2009 7:24 PM

 Reply posted for missliss.

If you do not think the Asacol is not working, make some phone calls.  No one is going to speak up for yourself - only you can.  You don't have to live in this type of pain. 

I am seeing a therapist to work through my CD, (we've exhausted all meds, nothing left for me to take), and I believe it is going to make a huge difference in my attitude.  I wanted this (therapy) and I'm very fortunate to have EAP where I work to help. 

Keep the faith!

FPO aca11
Joined Mar 3, 2009

Wed, December 02, 2009 1:00 AM

 Reply posted for missliss.

Hope things are stabilizing for you... sharing problems helps and sometimes even brings solutions; but it rough going through it -- keep us posted! Lynn

FPO wannabeucfree
Joined May 20, 2023

Sat, November 28, 2009 8:46 PM

 Reply posted for wannabeucfree.

Thank you for the well wishes. I am taking Asacol which I think makes everything worse, and Rowasa enemas. The last few days I have been in bed resting as much as possible.  Today was a better day still YUCK but better.

FPO missliss
Joined Nov 26, 2009

Sat, November 28, 2009 1:00 AM

 Reply posted for missliss.

Good luck to you. It is so hard to know what the triggers are, and what will cause a flare-up.  My recent flare is calming down, still have issues, but making progress. I hope yours will calm down soon-- are you taking medications?  I am wondering if there is any same-ness about flares-- (being recently diagnosed, I realize that the past 5 years or so have been a progressively worsening flare-with plateaus!).  So coming out of it has been also  slow, with some missteps.  Hang in there!

FPO wannabeucfree
Joined May 20, 2023

Thu, November 26, 2009 7:34 PM

 Reply posted for missliss.

I give you sooooo much credit for staying home!!!!  I know you know this but you need to take care of yourself and I'm glad you are.  Don't be too sad.  I'm sorry you're lonely but you are obviously a very strong woman.  I have UC and CD and it gets to me, too.  I want to say no to more things and will get to that point some day, I hope.  Have a great day/night, I don't know what time it is where you are and hopefully tomorrow will be better!

ngc

FPO ngc249
Joined Dec 19, 2008

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