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Colitis along with Gluten Intollerance


Fri, March 26, 2010 12:00 AM

I was diagnosed with Collagenous Colitis 2 years ago. I had the chronic diarhea, cramping, bloating, nausea, etc.  Endocort helped to end the 6 weeks of diarrhea then over the next couple years I learned which foods to eat and which to avoid. I was going along doing rather well with short bouts of cramping which seemed to usually subside after 3-4 days but then about 3 months ago the cramping became more frequent in spite of a rigourous diet.  My GI doctor along with 2 dieticians persuaded me to try a gluten-free diet.  I would go gluten-free for 2-3 days and say "well it didn't help, guess it's not the wheat".  Finally I decided to try gluten free for 2 entire weeks.  It was extremely difficult to do, especially since I am a bread "junkie".  Well guess what? After a couple weeks the cramping subsided.  And I am now eating gluten/wheat free and feel MUCH BETTER!  It took 2 weeks to get it all out of my system.  Now my mother (who is a very uneducated person and doesn't trust doctors) has suffered for years from intestinal cramping and she went off of the wheat and is also feeling better. I encourage ANYONE with colitis to go on the website for Gluten Intollerance.com .  You will not believe how many people have this. It can masquarade as cramping, bloating, rashes,and many other things.  But it is worth a try to go gluten-free to see if this helps.   Many people with colitis also have gluten intollerance.  I do not have true Celiac Disease (had the tests) but gluten intollerance can be just as painful.  I encourage everyone to give it a try. And NO it is not easy to do, but better than living in pain.  Oh , and by the way, I also have Lactose Intollerance (for about 15 years). So I "do without" more than i can "do with".  

FPO nancyt
Joined Mar 26, 2010

Wed, April 21, 2010 12:00 AM

 Reply posted for nancyt.

I've had collagenous colitis for 11/2 years. I'm still on entocort. I still have days of bad diarrhea, cramping and bloating. I can't really pinpoint it to foods I'm eating. My GI Dr. Just had me tested for celliac sprue. The genetic and antibodies blood work. He doesn't want to do endoscopy, because I perforated during  the colonoscopy. Because of the damage to my mucosal lining of the colon.I'm also being tested for lactos intolerance. I recently had a bad flareup thet he treated with high dose steroids. I thought this was going to go away, obviously I was wrong. Are you still being treated, or are you in remission? There are not many people with collagenous colitis.

FPO gg83
Joined Nov 13, 2009

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