Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

1st time in life I don't want to be anymore


Mon, May 26, 2008 8:44 PM

Have had CD for about 6 years.  None of medician works, now I have terrible pain in hands and feet.  Does anyone else have this?  I have always been a pretty joyful person until about the last 2 months.  I lay down most of the time.  I don't know what to do if my hands keep hurting like they are.  I know all here are in pain but until the last few months I handeled it pretty well, now I have a hard time getting up in the morn.  I have been on anti'depressents for years.  Just want to get away from the pain.  

FPO dwick
Joined May 26, 2008

Sun, June 22, 2008 12:00 AM

 Reply posted for dwick.

I have the same symptoms. If the pain and soreness is not in my feet , knees, elbows, hands it is in my gut. One doc suggested I might have fibromyalgia. But the pain had become so bad, I had injections (steroids) in my knees and elbows. The pain completely goes away, but the question persists.... WHY!!!??? I guess we can not stop until we find an answer.

FPO jg3393
Joined Jun 22, 2008

Mon, June 16, 2008 10:43 PM

 Reply posted for dwick.

What medications are you taking?  I took methotrexate for another condition and also developed painful hands.  I was about to replace all the towels in our house because they were too rough for me to touch.  I thought that they had all become too tough from washing.  As it turns out, the methotrexate caused me to develop chemical-type burns on my hands. If you looked at my palms, they looked sunburned.  Apparently, many people get these burns on their feet as well. The doctors were able to adjust my medication and the pain went away. 

I hope this helps.

Diane

FPO dmweinberg2000
Joined May 9, 2008

Sat, June 14, 2008 4:05 PM

 Reply posted for dwick.

if you were to follow carl fogarty's view of life 'pain is just weakness leaving the body' my interpretation, he aint never had cd and if he had maybe he would not of got on the motorbike in the first place.  never had the hand thing mate. worst for me when i have pushed it too far with crap diet and bam remission gone  pain says you need help.  the one thing i swear by and i do mean swear by 'attitude is altitude' and exercise helps me stay focussed on something else other than my stomach.  been in the game about 5 years now, asacol like normal but when it really does me, i end up on the entocort for a bash to try and keep it subsided. stay positive, wake up tomo and decide how who are going to do what you planned to do and dont let the stomach get you down.  i *** to my missus all the time that i wish that i had a stomach that worked and even consider praying every now and again.  i will live to be a grandfather and i am going to the next ricky hatton fight no matter how much a ticket!  focus and focus. do it.

FPO steveclayt
Joined Jun 14, 2008

Tue, June 03, 2008 12:00 AM

 Reply posted for dwick.

hi

i go to my therapist 2-3 times a week this is the hardest thing i have ever dealt with. i am always tired never able to be my old self. unable to work and living on pain and antiaxiety meds. things have to get better for us they can't be this bad forever. you will feel better and so will i. we NEED to believe this!!!!!!!

FPO juulez
Joined Jun 3, 2008

Sat, May 31, 2008 12:00 AM

 Reply posted for dwick.

Hey don't feel that you are in this alone, i was diagnosed in Feb of this year but have been living with it for a good 2 years now so I'm still fairly new to this but latly I can't deal either. I've started therapy to manage my guilt, guilt because i feel I'm messing up other ppls lives cause its my disease not theirs and guilt because i can't be who I used to be. Its hard not knowing, and yes the pain sucks, and it doesn't go away when you wish it would but I figure that what doesn't kill you makes you stronger. Go with I think its the army's saying of "pain is weakness leaving the body" you will get emotionally stronger I promise.

FPO rachj
Joined Jun 2, 2008

Tue, May 27, 2008 12:00 AM

 Reply posted for dwick.

Hi My name is amanda I have had chrons since 2005 which also gave me rhumatoid arthritis which my doctors say is common in people with chrons I understand what you are going through I am only 24 but I feel like I am 90 I dont know how to deal with it either I just try to make the best of my life and I do what I can do which is not much my R.A. has gotten so bad it is in my spine hips nees hands and feet they put me on tramodol and flexaril which does not help and besides that I have a six year old I cant be out of it all the time they have me on alot of depression pills to but I am still depressed I feel like I am alone and no one understands what a hard life it is to live with this illness I hope you feel better and I hope you find some help as for me I am in a new clinical research for a new medicine for chrons and R.A. I take infusions every two weeks it has not been approved by the fda yrt but I am hopeful it will work because nothing else has so far if you need to talk I am here.

FPO amanda24
Joined May 22, 2008

Mon, May 26, 2008 11:55 PM

 Reply posted for dwick.

I am a new member of this forum though I've had CD since 2000. Remicade intrabeinously works for me, but truthfully I can't function without pain medication and I've posted a question about it. I too have severe pain in hands forearms and feet which I attribute to work (see my post) but I wouldn't be surprised if it was CD. I've heard that arthritis and CD can go together. Please don't give up. You are not alone in your suffering and everyone isn't handeling it perfectly. Believe me.

FPO mdolsay
Joined May 26, 2008

Related Topics

Feeling Alone with my UP ...
Author Image BeauutifulChaos
Joined Feb 17, 2022

I was diagnosed in October of 2020 with Ulcerative....

read more

Stunned by how much this ...
Author Image Alrightalright
Joined Sep 11, 2021



read more

Navigating Challenges and...
Author Image heniersometch
Joined May 9, 2024

Nursing forming affiliations wrap a wide pack of h....

read more