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Surgery "curative" for UC?

Fri, June 12, 2015 1:49 PM

I am 37 years old,15 year post IPAA surgery. At the time I was told that removing the colon "cured" UC. I was diagnosed with iritis (inflmation of the iris) a few years ago. After being treated by an ophathamologist and a rheumatologist it sounds like iritis is one of the conditions considered an extraintestinal manifestation of UC, and that the surgery only cures one of the major symptoms of a larger disease process. Is anyone else in the fourm dealing with other autoimmune symptoms after colonectomy? If so, do you know of any research articles or other sources of information about this situation? Also, what type of specialist is treating you? In my case both the ophthamologist and rheumatologist feel I should have some sort of management for the entire disease instead of a just specialist for each part. They point me to my GI who understandably feels he is only able to manage the GI portion of the issue. I would like to have any related information anyone can provide.

hipeye01
Joined Jun 12, 2015

Tue, June 16, 2015 1:41 PM

Reply posted for hipeye01.

I have Crohn's not UC, but several extraintestinal manifestations. I see a whole bunch of specialists and up until now my GI was still my main doc. But now it's gotten so complicated that even she is struggling. I recently found a general medicine doctor who specializes in "complex diagnoses and coordinating specialists". I haven't seen her yet but it might be something you want to look into as well. I found her through general medicine at the hospital all of my specialists are at. Best of luck. and if you come up with another idea please let me know!

akr008
Joined Sep 2, 2014

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