Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Prepping for Surgery


Mon, November 21, 2016 4:53 PM

Hello Everyone:

First thank you for your time,

I am new to this site and was wondering if anyone had any advice and or suggestions (or words of encouragement) for me.

I have been living with UC for 2 1/2 years now, and have been on almost all the classes of medication there is for it. I am right now on my sixth round of Prednisone. I am as of now preparing to have a Total Colectomy done next week (11-30-16).

I appreciate any advice given, thanks again

FPO mschonherr
Joined Jun 12, 2017

Sat, January 07, 2017 12:44 AM

 Reply posted for mschonherr.

I had a Koch Pouch about 30 years ago when I was about 36.  It was the best thing I ever did.  You won't believe how well you'll feel afterward.  It is a pretty major surgery, so plan on a longer recovery.  But it is well worth it!!!  At first, I had to watch what I ate.  After a couple years, I was pretty much able to eat whatever I wanted.  I don't know what kind of surgery you opted for.  Hopefully, you've looked into the Koch Pouch and J-Pouch procedures.  These are both better than wearing a bag.  Just find a good surgeon who has had a lot of experience with these surgeries--you don't want a novice!  If you have any questions, don't hesitate to write me.

FPO indialogue
Joined Nov 29, 2014

Tue, November 22, 2016 5:24 PM

Make sure you go to a hospital where they specialize in the procedure and your doctor has done it a ton of times. 

FPO charbs
Joined Oct 31, 2016

Related Topics

Small bowel resection
Author Image jess123
Joined Jan 9, 2022

Hi, I'm preparing to have an ileocecal resecti....

read more

Flap Surgery
Author Image Kwarner1charter
Joined Feb 14, 2023

Had surgery on 10/27 after being in the hospital m....

read more

Jpouch Surgery
Author Image guillermo80
Joined Oct 11, 2016

I just had my first surgery out of three stage sur....

read more