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Surgery for CD

Wed, January 10, 2018 4:16 PM

Hi all,
I was diagnosed with Crohn’s Disease in 2013, when I was 16. I’ve tried a ton of medications: Remicade, Humira, Methotrexate, 6MP, Entyvio, and even Stelara. Some of these I’ve had allergic reactions to and others I’ve just stopped responding to. So nothing has really put me in “remission”.
My latest visit to the GI doctor was because I’ve developed a fistula connecting my colon to my bladder. A colonoscopy a few weeks later showed some pretty severe inflammation, blood, fistulas, all the works. So my GI is recommending surgery. I’ve had surgeries for abscesses before, but this is my first resection.
From what I understand, I only need a part of the sigmoid colon resected for now... but I am very nervous about not having enough healthy colon before the rectum to be used for reconnection. So a colostomy is a very real possibility. I’m only 21, so it makes me a little nervous. If anyone has tips or insights into life with a colostomy after a sigmoid resection, I’d really appreciate it!
Thanks!

knorbs0322
Joined Jan 10, 2018

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