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J-Pouch, Abdominal Pain, Possibly from Adhesions

Wed, February 06, 2019 6:57 PM

Hi,

I have had a series of 3 surgeries: a total colectomy with an ileostomy in 2014, j-pouch surgery with an ileostomy in 2016 and ileostomy takedown surgery in 2016. I am now experiencing some problems and am wondering if anyone else has had similar experiences.

Over the last 8 months I have had 3 episodes of severe sharp pain on the lower right side of my abdomen. Each episode lasts 4-6 hours and resolves on its own. I went to the ER for the last 2 episodes and all my scans and test results came back normal during these visits and the doctors were unable to do anything for me. My gastroenterologist thinks I have adhesions from surgery that are causing my intestine to twist or bend resulting in a temporary blockage that lasts several hours. In-between these severe episodes of pain I am also feeling soreness in that area and occasional mild sharp pains, especially when moving around, sitting down, bending, lifting something or putting pressure on the area. The pain is always on the lower right side near where my surgical incision & stoma were.

Has anyone else experienced anything like this? Has anyone else had adhesions after surgery that caused a similar experience or was your experience different? Any thoughts, ideas, suggestions for me?

It is frustrating not knowing exactly what is causing this because every test the doctors run is coming back normal. My next steps are to have a barium test and talk to a surgeon about possibly having surgery to remove any adhesions that are present. An additional surgery could lead to more adhesions though, so I am nervous about that, especially because we don't know for sure if adhesions are the problem. I really want to figure out what is causing this & find a solution to resolve the issue.

Has anyone else been through this?

I would love to hear about other people's experiences wit

sj885
Joined Apr 7, 2021

Thu, February 07, 2019 2:36 PM

Reply posted for sj885.

I had the j pouch surgery and pain for about a year afterward. The pain I could tolerate. Then I got a stricture that felt like lightning bolts going off in my gut. Went to my doctor on Friday, xrays on Saturday, surgery on Sunday. Then ten days in hospital with nothing to eat or drink.

charbs
Joined Oct 31, 2016

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