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Seton Placement

Sat, May 18, 2019 3:39 PM

Had my second seton placed 2 weeks ago and I'm still unable to walk normally and in enough pain that I am taking Oxy.  I feel like a wimp.  My last seton was an awful experience--surgeon had to keep re-cutting around the area because it would heal too fast.

All I read about is how quickly setons heal and how people don't even notice them.

Is what I"m going through unique?  I'm worried my tolerance for pain has gone down after 25 years of Chron's, and I'm taking pain pills unnecessarily.

FPO Ethan
Joined May 18, 2019

Sat, September 28, 2019 4:07 AM

Reply posted for Ethan.

I have had my seton on for about 2 months and it has been an awful experience. The pain has gotten progressively worse and so has the bleeding. I’ve done rounds of antibiotics but they haven’t helped so I don’t think the pain is caused by an infection. I’m a server so I’m on my feet a lot which makes the pain even worse. I feel like my doctor has dismissed my pain even though he’s admitted that it’s not normal to still be in this amount of pain. I have a LIFT procedure scheduled in 2 weeks but does anyone have any advice for pain management? I take lots of sits baths and a heating pad works great at home. I need something for while I’m at work.

FPO Trossmathews
Joined Sep 28, 2019

Sat, August 03, 2019 12:04 PM

Reply posted for Ethan.

Hi, I have recently had 2 setons almost a week ago. Can you let me know what I should expect in terms of symptoms. I understand they drain but from experience how often and how much. I read your able to live life as usual I am just seeing if this is something you agree or disagree with? If anyone can give me any sort of info on how they found it please. 

FPO Patricia94
Joined Aug 3, 2019

Tue, July 09, 2019 7:29 AM

Reply posted for Ethan.

Good morning \
New to the group. I had a seton placement on the 28th of June and am going through a rough patch also. I am very interested in alternative treatments to help with the healing protocol. Thank you so much.

FPO JCThomas
Joined Jul 9, 2019

Mon, July 01, 2019 5:27 PM

Reply posted for Ethan.

I had a fistula that was building up pressure for days.  I tried like heck to pop it  without results then yesterday it just started draining. It will probably drain for a week or so.

FPO charbs
Joined Oct 31, 2016

Tue, June 11, 2019 6:44 PM

Reply posted for Ethan.

I actually just got my seton out but it was in for 3 months. I went through the same things as you such as not being able to walk normal. It really stinks but it does get better and you just have to keep fighting.

FPO alyssa26
Joined Jan 23, 2019

Mon, May 20, 2019 12:21 PM

Reply posted for Ethan.

On more than one occasion I’ve Had a doctor tell me I must have a high tolerance for pain. Not sure how to take it. I don’t WANT to suffer, but with these fistulas I sure did.  I usually know when to go to the doctor, and a couple of times my Dr. said I needed surgery immediately.  My fistulas were diverting blood and pus to my testicles. That came on really fast and the pain was immense.

FPO charbs
Joined Oct 31, 2016

Mon, May 20, 2019 8:35 AM

Reply posted for charbs.


It ended up bleeding a LOT yesterday night and now it's much less painful.  I guess it just needed to push some gunk out.

I feel like I was a lot tougher 15 years ago.  This disease has worn me out.

FPO Ethan
Joined May 18, 2019

Sun, May 19, 2019 4:31 PM

Reply posted for Ethan.

Give yourself some credit. Those things never really heal up, but I would relieve pressure by squeezing the site while in the shower.  Spray hot water on the wound for a couple of minutes first.

FPO charbs
Joined Oct 31, 2016

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