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Fistulas aferter totoal coloctomy. Will have oostomy bag for life

Thu, December 16, 2010 1:00 AM

JUst looking for ,otherd who have hade fistulas after surgery. My are in abdomanal area, and coming out my incision line. Any thing will help. going a little crazy. Oh also schedulde for surgey to fix them on Jan. 3 2011. Thanks, Rich

richizy
Joined Apr 23, 2009

Sun, January 23, 2011 10:59 AM

Reply posted for richizy.

I'm responding to Rick, who asked about fistula after surgery, coming through the incision. I'm interested in your experience, because I had major abdominal resection surgery on Jan, 5, and a week or so later, got the same thing. My treatment is TPN, nothing to eat or drink for 4-6 weeks, to allow healing. How long did you wait for the repair surgery? How did that go? what did it entail? Thanks! Joeff

joeff
Joined Jan 23, 2011

Thu, January 06, 2011 10:53 PM

Reply posted for Smacias.

Well, the ileostomy means that I "poop" a little differently, but all in all my quality of life is amazing! The surgery was a big step, but after trying every medication, I figured it was my next best bet for relief. No regrets from having it done. It took some getting used to, but once I recovered from the surgery and started gaining weight and feeling better, I realized that it was the best choice for me.

bwickerham
Joined Dec 25, 2010

Fri, December 31, 2010 9:49 PM

Reply posted for BWickerham.

Since you have a bag now, do you live a normal life or do you have some issues? Cause I might have to go back in for another surgery and this time a bag is involved.

smacias
Joined Dec 31, 2010

Sun, December 26, 2010 1:00 AM

Reply posted for richizy.

Keep your chin up! I had a chain of 3 recurring fistula on the back of my thigh even after ileostomy surgery. Once my Crohn's calmed down and my body healed a bit from the surgery, it was better able to fix the fistulas. Mind you, it took one more minor surgery to entirely fix the fistula, but they've been gone for 4 years now and show no sign of returning. Sometimes these things just have to be taken in stages...I know it stinks, but hang in there!

bwickerham
Joined Dec 25, 2010

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