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Parents Please Read this does help

Sun, April 28, 2013 8:28 AM

All the Newbies out there, I belong to a group and there are a ton of us that have IBD. I have had it since 2011. I to tried Pentasa and Endocort and for me it didn't really do anything. But there is something that works. There is no cure for IBD but it will bring you back to a point where you can function sometimes without meds and you can lead a full life. There might be flares randomly but that all depends of you and what you put in your mouth. It is called the SCD Diet. It is a way of life. The Specific Carbohydrate Diet actually works because the woman that helped create it was Elaine Gotschall. Her daughter has UC. The basis of the diet is NO dairy, grains, soy, bread, pasta, only certain carbs etc. The name of the book is Breaking the Vicious Cycle and it explains in detail what to do and not do. There is a intro diet and I will be honest you will lose weight in the beginning. Your body is going to CRAVE the sugar. Let's face it the SAD (Standard American Diet) is full of sugar. Legal or allowed foods, grass fed beef, chicken, turkey, fruits in moderation, veggies and some baked goods with Almond flour or coconut flour. Google SCD Lifestyle, and recipes and you will be on your way. Doctors and some people do not believe in this diet and they will say it doesn't work. After you have healed some try Digestive Wellness, pre-made food. Hope this helps. Each person has a choice. Do they want to have the symptoms and flares of IBD while being on the drugs also or be inconvenienced and cook ALOT and eat healthy. Moms there are links out there to help with younger kids and IBD. When you research Comfy Tummy and some of the other sites it goes into detail about children. These kids need to feel normal and start having fun again.

mjppoll
Joined May 22, 2011

Sun, May 05, 2013 12:31 AM

Reply posted for mjppoll.

Totally agree with this. I learned about SCD in 2010 when I came to this forum. My daughter has been following it for 3 years (starting at age 5) and after many ups and downs in year 1, she no longer had symptoms and her inflammatory markers are now normal for the first time in seven years since she was diagnosed with juvenile arthritis. She's been on many medications, but continued to feel poorly. I had had enough of all her diagnoses and watching my daughter suffer. I also worried about her future if I didn't do something about her health asap. I'm disappointed that doctors and nonprofits downplay or totally dismiss dietary changes as a treatment possibility. It may not be a cure, but if it manages to lessen or eliminate symptoms, that's more than the medications could do! It is certainly not easy to follow... especially at the beginning... but it has been much easier than watching my child in pain and so ill. SCD has been a lifesaver!

jamom
Joined Feb 3, 2010

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