My daughter was recently diagnosed with Chrohns and was given remicade infusions. After 12 hours of having the Remicade she felt so much better and it made such a difference for her. Just curious about future infusions and others experiences. Does anyone else have children on remicade? What have your experiences been?
Reply posted for sumsmom.
My daughter Brenna is only 4 and she was diagnosed last summer at her 3rd birthday. She is on SO many medications- apriso, azathioprine, prednisone, and an antibiotic for C Diff, besides supplements, and we have been talking about Remicade next if going off steroids goes badly again this time. I'm SO worried about having such a little one on an IV for all that time but she got close to hospitalization last flare and I don't want her to have to end up there. It is very encouraging to hear that it has made such a difference for your daughter! I hope she continues to thrive on it!
Reply posted for sumsmom.
Thanks! My son is starting remicade on Monday and your post is very encouraging!
Reply posted for sumsmom.
My husband was diagnosed with UC in 2005 and has been on Remicade since 2007. He has had great success - no flares since starting! While appointment scheduling can be difficult to manage with his career, he has seen nothing but benefits from the treatment. I hope your daughter has a similar experience : )
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