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Diagnosed Last Year


Mon, December 01, 2014 6:51 AM

My 11 year old son was diagnosed with UC last year, around this time. Since then he has been in and out of remission, the recent mix of meds which included uceris and a high dose of asacol seemed to be working well until we tapered him off of the uceris, since my son's dr says it is not a good long term maintenance med. We switched to a combination of 6MP and asacol that is not working. He is been in a relapse for the last 5 weeks, running to the bathroom 5-10x per day, dealing with a cough and a low grade fever,  most of his stools are not very productive but very bloody.

I am scared and worried and out of prayers. His condition is affecting his health and his quality of life and I don't know what else to do.

I am researching my doctors suggestion to move him to remicade but these more aggressive drugs scare me - I hate to think of my wonderful, 12 year old boy on so many meds, but don't know what other options I have...

I really just needed to vent somewhere, among people and mothers and fathers who know what we are going through. But would appreciate any thoughts or suggestions.

FPO joajg
Joined Dec 1, 2014

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