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My daughter was diagnosed at 5 years old


Tue, August 29, 2017 10:32 AM

I am very concerned - my daughter was only diagnosed at 5 yrs old, which I understand is rare.  I am concerned that she will have to get her colon removed at a young age.  Please help
 

FPO Niti
Joined Aug 29, 2017

Sat, September 02, 2017 2:52 PM

Reply posted for Niti.

Thanks guys.  Let's keep each other up to date on each other's young ones?  Take care.

FPO Niti
Joined Aug 29, 2017

Sat, September 02, 2017 9:37 AM

Reply posted for Niti.

That sucks. Every patient has a different course, one of the hardest things about this disease is living with the uncertainty; every day you wake up not knowing what is going to happen. Celebrate remissions by doing fun kid adventures and keep her com for table during flares. Get a great doc. Good luck.

FPO healerchic
Joined Sep 13, 2017

Thu, August 31, 2017 3:08 PM

Reply posted for Niti.

My daughter is 7 and was diagnosed almost 2 years ago as well with UC.  I am glad to have a doctor for her that was clear that she needed remission and healing.  Hoping for no surgery down the road but I can only take one day at a time. 

FPO jennev4
Joined Aug 31, 2017

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