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my very sick wife


Sun, February 07, 2010 9:42 PM

My wife was diagnosed with Crohn's 3 years ago and was hospitalised for 4 days. It was the most difficult thing she has ever had to endure, I feel so bad for her because she really has not been normal since, everything she does effects it. She has been taking pills everyday since.She has been taking 6-MP,Prednesone,Pentasa,and Naproxen for pain and flairups.She is currently hospitalised as we speek and and she had a tube stuck up her nose and into her stomach, it is so hard for me to see her in that condition and knowing there is nothing I can do but support her.She is afraid to eat alot of things and she has lost lot of weight because of it.I am thinking it is putting more stress on her whole entire body not just her stomach.We were trying to get pregnant for awhile,but I don't think this would be a good thing,because of all the meds she is taking,would be bad for the baby.I am very frustrated.I feel very helpless.

FPO goodhubby3
Joined Feb 7, 2010

Thu, February 11, 2010 12:01 PM

 Reply posted for goodhubby3.

Hi,

After I replied to your message yesterday, I thought about how difficult it can be for family members of people with IBD. 

Last year, my son, who is 11, got diagnosed with Crohn's Disease.  In many ways, it has been emotionally harder for me to watch him go through this than it is for me to deal with my own illness (Ulcerative Colitis). 

Even though we may want to drown ourselves in grief sometimes, we know we must be strong so we can help the person we love.  This is hard to do, and those of us in this position benefit from having people around us that will let us cry on their shoulder often.  

I try to teach my son to live with Crohn's the way I have learned to live with UC. I want him to realize that having IBD does not ruin your life.  It has definetely not ruined mine. Yes, it is a serious problem, but it doesn't need stop you from enjoying life or from achieving whatever you want to do.  I treat my son like I would any other kid, without labeling him as "sick". I tell them that the researchers are learning new things every day, that there will be better treatments, and most likely, a cure someday soon.

Even though your wife is really sick right now, with good doctors and the right treatment, she will get through it.  Then, you can go ahead and lead a very normal life together.  I hope your wife feels better soon!

FPO raquelita
Joined Dec 28, 2009

Wed, February 10, 2010 4:37 PM

 Reply posted for goodhubby3.

Hang in there!  Your wife will feel better...it won't be this bad all the time and she should see more normal days ahead.  Crohns won't wreck the rest of her life or yours.

I have Ulcerative Colitis and was diagnosed about 11 years ago, after my first son was born. Three years later, I had another baby, with the blessing of my GI.  The GI told me not to worry about the effects of UC and meds on pregnancy.  All the time I was pregnant, I took medicine (mesalamine and topical steroids).  The UC was in a constant flare-up, but I was otherwise healthy, and the baby was born healthy. After the baby was born, the UC calmed down.

UC and Crohns shouldn't prevent your wife from having children, once the crohns get more stable (which it should).  You just have to make sure you have a really good GI who is treating the Crohn's agressively during pregnancy.  I've heard of others on these forums talk about being pregnant while taking lots of meds for IDB. 

 Good luck.  Hope your wife feels better really soon!

FPO raquelita
Joined Dec 28, 2009

Tue, February 09, 2010 10:51 PM

 Reply posted for goodhubby3.

Hi

I am so sorry your wife is going through such a hard time. I'm sure it is hard for you to watch her suffer!  Hopefully you guys will get things managed and go on to get pregnant.  One thing I  wanted to mention was the naproxen...we were told not to use any type of anti inflammatory which I believe naproxen is (also advil, ibuprofen)  ??

FPO flowerpower
Joined Jan 24, 2010

Mon, February 08, 2010 9:57 PM

 Reply posted for goodhubby3.

Hello there.  My son was diagnosed with crohns in Oct. 2008.  He was only 7.  I wanted to tell you to hang in there.  Your wife will have better days.  I hope when my son gets older, he will find a wonderful person to share his life with that will support him.  That is the best thing you can do for your wife is continue to support her.  Good luck.  I hope she gets through this hurdle soon.  Take care.

FPO loving mother
Joined Nov 28, 2008

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