My son has had UC now for 2 years and been on 6mp, Pentasa, Endocort, and Prednisone for flare-ups during that time. This past flare up has not been helped by steriods and we made the decision to begin Remicade. Anyone that has/is on Remicade -I'd appreicate hearing your experiences. Thanks. My email is mylittleguyuc@ymail.com Thanks!
Reply posted for mylittleguy.
How are things going? Thinking of you all....
Reply posted for mylittleguy.
Hello,
I know it has been awhile since you posted this question, but figured better late than never. My daughter, who is now 20 yrs old, has been on Remicade for 2 yrs. I too was very afraid of this treatment, but it really was the best thing for her. I really hope this treatment works as well for son and it did for my daughter. I too have Crohn's and was diagnosed at the age of 19. Believe me when I tell you that when the pain is really bad you dont care what they have to do to take the pain away. Honestly, I would rather be in Labor then have the Crohns or Colitis pain. I truly understand your concerns, but when we were at a Crohns Convention we were told that only 13 people have a serious reaction to Remicade out of all of the people that are using it for Crohns of Colitis. I wish you and your family the best of luck. I know my daughter and I were much older when diagnosed, but your son will be fine once they find the right treatment for him. I am still on oral medicaions, but those did not work for my daughter. I hope this helps ever it t is just a little piece of mind.
Soccermom
Reply posted for mylittleguy.
We'll be thinking of you!!! I wish I had a Remicade experience to share but don't. I know lots of people have done really well and hope it works that well for your son!
Hi,
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