Day to day chores
Thu, July 30, 2015 12:48 AM
I'm going on 8 years since diagnosed with crohns and this past year has been my worse, I am not working, most days it's hard just to get through the day due to symptoms and pain. I'm blessed to have a supportive family however my husband is dropping little hints how I'm letting the house go, how I use to cook more, etc Has anyone else had to work through this? If so, suggestions? Up until this point I thought I was managing well, I have a 13 year old daughter that I keep busy with sports and scouts my mom lives with us and is suffering my heart problems so I assist with caring for her.... I really feel like I'm letting my family down and never realized there was a problem
Joined Jun 11, 2008
Fri, January 29, 2016 8:38 AM
Reply posted for upsidedown.
The most important thing I've learned through having Crohn's is that it is very important to have a support system from your family. You need to talk to your husband and explain to him how sick you are feeling and suggest that he pitch in on the chores, too. If you have too much on your plate, you won't have time to relax and feel better.
j789Joined Jan 2, 2016
Sun, December 13, 2015 10:00 PM
Reply posted for upsidedown.
I can relate to you in this topic. Being a mother of a 17month old and 12 year old who are very active and working full time, I feel like I can never just catch up. When I do have my days off, all I want to do is rest, my husbands some times thinks I'm lazy if I don't get some house work done(which I quickly correct) but it's just hard trying to be an active mother, wife and manage my career while trying to manage my Crohns, especially when I am having s flare up!
Joined Dec 13, 2015
Wed, November 04, 2015 5:53 PM
Reply posted for upsidedown.
I'm alone, and I hardly do anything. There are so many days I can't get out of bed. I try for hours. I try to stand up - I faint and fall back onto the bed. My sink is gross. I run out of clean socks and underwear. Changing the bed is SO hard, but often imperative (until I lower that standard, too, I guess). Nobody believes me. And I've learned the best way to guarantee that you get no help, is to ask for some help.
Joined Aug 16, 2013
Mon, September 21, 2015 9:10 PM
I have just been diagnosed with severe Crohns. I seemed to have had this for a few years. I had a colonoscopy with a local GI doctor 2012. Everything seemed fine. I have ended up in the ER many times this year with fever and terrible pain. They did emergency colonoscopy at university of Miami. I thank G d I went there. Finally know what's wrong. I will be starting remicade the end of October. I watch everything I eat I have lost 18 pounds since August. There are no foods I miss, mind over matter. I am very scared, I know there is no cure. I feel as if my life is upside down. I take high doses of prednisone. I am constantly tired and no energy. I just want to be me again since March this has been out of control.<br /> <br /> <br />
gayle06Joined Sep 21, 2015
Sun, August 02, 2015 1:50 PM
Reply posted for ashleep.
Ashleep thank you for your reply I'm sorry you are having issues but it is so nice to know I'm not alone😀
Joined Jun 11, 2008
Sun, August 02, 2015 1:21 PM
Reply posted for upsidedown.
I have about the same problem. Nobody complains but they do "hint" that I don't do enough. If only they truly understood how hard it is. However I would never wish this disease on my worst enemy so I truly don't want anyone to understand. I'm sorry this year has been your worst. I hope you get to feeling better. I was recently diagnosed with Crohn's but have had UC for 4 years. I'm on Remicade but am not seeing good results. All I can do is be tough and help support others in the same boat. Best wishes!
Joined Aug 2, 2015
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