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severe crohn's; feel like a lab rat


Sat, September 16, 2017 4:53 PM

I was diagnosed with crohns disease in 2005 but after two bowel resection of my small intestine it went into remission or mostly remission for quite a long time. After I gave birth to my son two years ago, it's been flaring really strong. I would classify my disease as severe, it seems to hit hard when it hits. In the last year I've been on budesonide, pentasa, imuran (which after a year of using I finally figured out why I was getting a stiff neck and headaches regularly!), and most recently on 6mp (which gave me stiff neck and headaches within four days of use so I quit that one too ). Nothings worked so far, my calprotectin was recently tested at 192 (I'm pretty sure that's way too high..). Now I'm waiting on the insurance company to approve entyvio and I couldn't feel more like a lab rat going through round after round of drugs! Anyone here got severe crohn's and have found some relief somewhere? My biggest issues are chronic diarrhea, pain with bowel movements, and absolutely no energy at all...

FPO jenn1986
Joined Sep 16, 2017

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