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Total Proctocolectomy


Wed, January 18, 2023 3:28 PM

Hi, I'm a 21yr old female with Crohn's. I have to have a full proctocolectomy in 2 weeks (I've already had an ileostomy for 12 years), I'm worried about complications because of the area, and the risk of damage to nerves, the vagina, uterus etc. I know the risks are rare and my surgeons very experienced, but has anyone had/knows someone whose had a proctecomy and experienced any side effects to these organs or sexual functions?

FPO rams01
Joined Jan 18, 2023

Thu, March 28, 2024 7:33 AM

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Fri, March 22, 2024 10:49 AM

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FPO Brianlmers
Joined Feb 15, 2024

Sat, March 02, 2024 2:21 PM

Reply posted for rams01.

For the most part when I when I did a poll it was astonishing that not a lot of ibd patients had any severe adverse complications I wish you all the best 

FPO gameofcrohns42
Joined May 11, 2023

Wed, February 28, 2024 4:19 AM

Reply posted for rams01.

Proctectomy is a surgical procedure that involves the removal of part or all of the rectum. While the procedure can have significant effects on bowel function and quality of life, it can also impact sexual function in some cases. It's been 1 year since you raised this issue on your forum. How is your health now? Can you share what you experienced after surgery so we can learn more. bubble shooter

FPO Tekked
Joined Feb 28, 2024

Tue, February 27, 2024 3:18 AM

Reply posted for rams01.

Hi, I'm sorry to hear that you have to undergo a proctocolectomy, but I'm glad that you have a skilled and experienced surgeon. I had a proctocolectomy with end ileostomy two years ago and I can tell you that it was the best decision I ever made. I was scared and nervous before the surgery, but it went smoothly and I recovered well. I did not have any complications or side effects to my organs or sexual functions. In fact, I feel more confident and comfortable with my body now. I can enjoy sex without pain or worry. I can also eat whatever I want and do whatever I love without fear of flare-ups or accidents. My ostomy pouch is easy to manage and does not bother me at all. I have a normal and happy life with my partner, family, and friends. I hope this helps you feel more optimistic and reassured. You are not alone in this journey. You have a lot of support and hope. I wish you all the best for your surgery and recovery. You got this!

FPO may61
Joined Feb 27, 2024

Sat, April 08, 2023 8:32 AM

Reply posted for rams01.

 I know the risks are not exactly the same, but I have not had any problems related to the surgery that you mentioned. I do have one muscle in the rectal area that cramps occationally when over stretched that never cramped pre surgery, but nothing that interferes with daily life. Good luck!

FPO gameofcrohns42
Joined May 11, 2023

Mon, March 13, 2023 11:10 PM

Reply posted for rams01.

Hi! I had a simialr surgery (a colectomy that included removing most of my rectum) when I was 16. I know the risks are not exactly the same, but I have not had any problems related to the surgery that you mentioned. I do have one muscle in the rectal area that cramps occationally when over stretched that never cramped pre surgery, but nothing that interferes with daily life. Good luck!

FPO aleahmd
Joined Sep 8, 2022

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