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Trying to get pregnant...


Wed, May 27, 2009 8:09 PM

So my bf and I have been talking about trying to get pregnat I am excited and everything but I am also worried.  I have a fistula that of course is vaginal we have kinda been trying for a couple months and still no happy news.  Has anyone else had any problems?  When I ask my dr he says that I should have no problem but you know how it is they really do not liketo tell you anything bad.  So I am just wondering if any of you ladies might have some insight into this issue.  Or if anyone with Crohn's let me know what you have experienced.  Should I be worried or not? 

Thanks

Jess

FPO jada
Joined May 27, 2009

Mon, June 08, 2009 12:33 PM

 Reply posted for nadiaetman.

I am very curious-what is a Rectovaginal Fistula? What are the symptoms? What does it look like?

FPO durango18
Joined Sep 24, 2008

Mon, June 08, 2009 12:33 PM

 Reply posted for nadiaetman.

I am very curious-what is a Rectovaginal Fistula? What are the symptoms? What does it look like?

FPO durango18
Joined Sep 24, 2008

Mon, June 08, 2009 12:33 PM

 Reply posted for nadiaetman.

I am very curious-what is a Rectovaginal Fistula? What are the symptoms? What does it look like?

FPO durango18
Joined Sep 24, 2008

Sat, May 30, 2009 12:00 AM

 Reply posted for nadiaetman.

Completly understand I have had a fistula for 4 years and Doesn't it make sex grand!  They say that they do not mind but I do not feel sexy and that makes it hard.  but he is understanding.  I have been on remicade for all 4 of these years and I have many abcesses which feel great.  They keep telling me that the remicade will heal the fistula but it doesn't and I can not have surgery because I had the J pouch done and everything is scar tissue so surgury will just make it worse.  I have it since I was 14 also and I am now 27.  But it could always be worse.  If you want to talk some more let me know.  We can exchange emails it sounds like we have a lot in common.

FPO jada
Joined May 27, 2009

Fri, May 29, 2009 7:04 PM

 Reply posted for jada.

....So, I think that is my side effect from Remicade which is unbearable. I met with another surgeon who recommended surgery from the anal side since the vaginal surgery was not successful. Today was my surgery date and I went under anesthesia and everything, I woke up thinking I had the surgery. I found out the surgeon could not find the hole, even though hours before I had surgery I had passed a lot of gas and stool through the vagina. So surgery was not done and now they think the Remicade should be done again and because it might have been slowly working. But I don't want to take Remicade again if I have to go through the side effect that I had before. My doctor had also recommended that I could try Humira if Remicade doesn't work. So after hearing your experience with Humira, I am very hopeful. Thank you so much for sharing your story. I really needed to know I wasn't alone. I thought I was!

FPO nadiaetman
Joined May 29, 2009

Fri, May 29, 2009 7:04 PM

 Reply posted for jada.

Hi Jada, I was so desperate to find someone who is going through what I am going through. I had a girl 5 years ago but I been trying to get pregnant ever since she 12 months old. I get pregnant and have a miscarriage ususally at 3 months. I have had three miscarriages so far, I have pretty much given up the fact that I could have a successful pregnancy. It have been a very hard emotional roller coaster for me. My doctor says having another baby is not impossible but I have to get my chrons and fistula undercontrol until that could happen. I have had Crohn's since I was 14 and I'm 29 years old now and I have had a Rectovaginal Fistula for 5 years now and for 5 years I have had gas and stool pass from the vagina. It has been extremely hard and embarrassing to deal with. The gas passes without control and stool passes every time I use the restroom. Having a 'real' relationship with my husband has been very hard. I am getting really frustrated dealing with this. I had attempted surgery from the vagina area and 6 weeks after a hopeful surgery I was feeling the gas and stool pass through again! After one failed surgery my gastroenterologist recommended that I try Remicade. So after the third dose of Remicade I developed a really bad vaginal irritation that just wouldn’t heal, it latest 7 weeks (hell), when I stopped the Remicade the irritation disappeared.... continued...

FPO nadiaetman
Joined May 29, 2009

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