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 Im new to this site and Ive had Cronhs now for about 4 years. In those four years my sex drive has gone down hill . I had a regular sex drive before being diagnoised with Crohns, and now I don't want anything to do with sex. My husband understands to a point . But he complains about not getting it like we use to . We've been married for 5 years and I don't want this issue to be the reason that we broke up and I'm affaid that he will look else where to get it even though he says he won't. I've even had my harmones checked and they were fine . I dont know what else to do.  Please tell me I'm not the only one like this out there dealing with this.

 Reply posted for upsidedown.

hey upside down,

Are our husband's related, because mine says the same thing. i don't know what to do about it though. My sentiments exactly...

What to do...

 Reply posted for ladytrucker709.

I know this is an older post, but i was searching for one like this. Has it gotten any better? I've had Colitis since 95 and I never really paid much attention to how it affected my sex drive until now. I was steroid dependent and it took me many years to get off of it. I finally did and when I was off of it, my sex drive was normal and I felt good too. Physically, emotionally etc. I got married in June immediately after getting back, I got a flare-up. I put off getting on prednisone because it took me 11 years to get off of it. But, after 3 months, I had no choice. Of course, being that sick, I had no sex drive and now I have no sex drive even though I don't feel as bad. I don't know when it will come back. I'm still on prednisone, not able to get off of it yet, but I'm trying. But it's a definite sore subject with me and my husband. He doesn't understand and it's a cause of argument. I can't help it. I want to help it. I just don't know how. I was so relieved to know that it's not just me. Doesn't help him any though. I guess all I can do is pray that I can get off these meds and get back to me.

 Reply posted for ladytrucker709.

I'm glad to hear I'm not alone....I just had surgery and even before surgery my sex drive is at a low.  I just don't feel like having sex for many reason's PAIN being a HUGE factor.  But what to do....I fear I'm going to lose my husband over it, sex is becoming a huge issue in our marriage.  He see's it as a sign off me not wanting him or not caring about his needs.

What to do.......

 Reply posted for KatAD.

 i know how you feel.  i was dig in 1991 but had it for at least 10 years or more before that. i have found that during the worst times, i have no sex drive but when i feel better, it comes back, sort of.  since my last and worst episode that i cannot seem to pull out of, i have lost it all.  it is very hard to feel sexy when you are scared you are going to poop as you *** , so you hold back and don't *** . but you pretend, then feel guilty for pretending because you love your husband. and you are sexually frustrated because you held back.  it is just a viscous cycle. my hubby tries but i just give up and  want him to hurry and just get it over with and that is not fair to either of us. sometimes i think the only fair thing would be to leave him and let him find someone else, but i love him so much that i can't bear the thought of that.

 Reply posted for csi518.

I must admit that my sex drive dropped dramatically when I was in a flare. (Didn't know I was in a flare, this went on for 2 months, then finally was scoped and diagnosed). Boyfriend has been very patient and understanding and we have found "creative" ways to be intimate without having intercourse. Gradually as I started meds and feeling better, I got more "into the mood", but I agree with everyone else. It's hard to feel sexy when you're bloated, crampy, and worried about gas!

 Reply posted for KatAD.

I feel the same way KatAD I just dont feel sexy anymore .Im just glad my husband sometimes understands.

 Reply posted for ladytrucker709.

I am also having similar issues.  I have been married just over one year and diagnosed about 9 months ago, and I don't think my lack of interest has anything to do with the drugs.  I just don't feel sexy at all.  I mean...if my foot hurt all the time I could probably power through, but when it is my entire midsection that hurts all the time, especially when jostled or bumped by accident, I really don't feel like taking the risk.  Also, I have several fissures that aren't exactly in the areas required to participate in sex, but are close enough to cause me to be self conscious and uncomfortable.  Diarrhea, nausea, mouth ulcers and intense pain are not sexy, and there is no way around it, and it takes a lot for me to feel confident enough to be intimate.  My husband does a wonderful job of building me up, reminding me he loves me unconditionally, and being supportive if I am just not in the mood. 

 Reply posted for csi518.

Ive been totally off meds and still no sex drive . Ive been to both my OBGYNO and Gas. docs and have had tests done . Which all have come back normal. They try to tell me its all in my head and I told them that they we're men they wouldnt understand. I dont know what else to do .

 Reply posted for ladytrucker709.

I totally agree with you.  I have zero sex drive 99.9% of the time.  I have been awfully sick lately and am going in for surgery in two weeks.  I am hoping once I feel better my sex drive will come back...

 Reply posted for ladytrucker709.

I noticed my sex drive went down during flare-ups. But snce feeling better (on medication that seems to be working now), my sex drive has returned. During those 4 years, have you had any healthy times? If so, and you're still not wanting "it" try talking to your doc about changing meds...maybe it's a side affect?