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Connective Tissue Disorder??


Mon, August 15, 2011 5:10 AM

Hi,
Has anyone on here been diagnosed with a connective tissue disorder in addition to Crohns?

I'm having tremendous amounts of joint pain that overshadow the intestinal problems at this point. I just feel beat up and wiped out and I'm wondering if I have a secondary autoimmune problem that's not necessarily related?


FPO ot
Joined Jul 10, 2008

Wed, August 17, 2011 12:44 AM

 Reply posted for OT.

Yes. I went to the ER once because I had lesions on my feet and legs and ankles that were making it hard to walk and my regular doc was telling me to see a dermatologist. ER doc said I had connective tissue disorder and to see a rheumatologist. I was diagnosed with sjogrens's and borderline RA. I also had the bad joints to the point I could hardly open the fridge door in the morning because it felt like my fingers and wrists were going to break. The RA meds did nothing for me though. Treating the crohns ended up treating the joint issues at the time. I recently started using LDN (low dose naltrexone) and that has helped a lot after only 4 weeks on 1ml (less for the first 3 weeks).

FPO crohnsmommy
Joined Jun 19, 2008

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