Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Previous Topic Next Topic

Finally Relief by managing Diet

Tue, July 07, 2015 9:37 PM

Hello All,

I was diagnosed almost 10 years ago now with UC, and I really started to take control of my UC about a year ago. (I know, bout time to get in the game). I dealt with denial A LOT. Anyways, I was having flare ups and not able to bring them back down as quickly as I had before with the meds I was using. I knew that if I told my dr. he would just do 1 of two things: prescribe my med with a bigger dose or prescribe a new med (which I wasn't willing to even think about.) So after I used the online support group in the month of September last year, I started to try to make contact with a dietician to see if diet could help. To make a long story short, after 6 months of working with a dietician on diet, I found out I am lactose intolerant (sensitivity to lactose) and a sensitivity to caffeine.

I have been adhering to a new diet and a new way of life for me and my family, and I haven't felt better! I feel so good and have had zero flare ups! What an amazing feeling! If you ever thought that maybe there was something more to this diet thing, you should try to go and see a dietician and maybe get some relief with that.

Lactose was definitely causing my frequent flare ups as well as caffeine causing my major headaches.

Wish you all the best!

mandista
Joined Jan 15, 2009

Mon, July 20, 2015 6:56 PM

Reply posted for thedude.

Well my new "diet" isn't really a diet as it is avoiding the foods that I know cause the problems. But the only way I could find out the problems were was to go on a FODMAP diet and test each different food group. So there is a tolerance build up of lactose. So I can have hard cheese but not a lot and not every day. I can have cream cheese but I also wouldn't eat a ton. I specifically avoid milk and milk laced products as well as caffeine.

mandista
Joined Jan 15, 2009

Mon, July 20, 2015 6:53 PM

Reply posted for thedude.

No, I haven't cheated on the diet. I have actually been really cautious. It is just not worth the pain and suffering later when meds are not going to help it. And it is more of a tolerance level with lactose. So I can have hard cheeses just not a lot and I don't have it every day.

mandista
Joined Jan 15, 2009

Sat, July 18, 2015 5:33 PM

Reply posted for mandista.

do you ever cheat on your new diet?

I know its not worth a full-on flare but sometimes I wonder if I'm going to be sick all the time anyway why not enjoy the foods I like.

mrsgali
Joined Sep 24, 2013

Sat, July 18, 2015 7:53 AM

Reply posted for mandista.

would you explain a bit more about your diet, did you just reduced lactose and caffeine ?? or is there more to it ??

thedude
Joined Jul 16, 2015

Related Topics

Weight and Eating

KelseyShoup
Joined Sep 26, 2020

Hello so I've been struggling to get my weight....

read more

Nausea and Vomiting with ...

crystal73d
Joined Aug 4, 2021

Hi all- I have been diagnose with Crohns disease ....

read more

Help losing weight

Twinsnana
Joined Feb 13, 2022

You're definitely not alone. I have Ulcerative....

read more

Welcome to the Crohn's & Colitis Community!

This website is associated with the Crohn's & Colitis Foundation.

Please read our Top 12 Rules before posting messages and sharing stories. Always be courteous and sensitive to others!

Intended audience. The Crohn's & Colitis Foundation Online Community is intended for patients and their caregivers, family and friends. The Community is not intended for industry representatives or advertisers and these individuals are not permitted to participate on the site.

Meet the Crohn's & Colitis Community! Browse our site to see what our community is talking about and find issues important to you.

Join in and share your stories. After you feel comfortable with our site, register to share your thoughts on a regular basis.

Stay secure. Remember that our site can be viewed by anyone on the Internet. With the exception of our registration and personal pages, search engines are available within this site. To guard your privacy, follow these simple rules: do not share your address, phone number, details about your family, or anything else you would feel uncomfortable with others reading. If you post your personal email, be aware that you may receive spam e-mail from spammers who gather addresses off of the web.

Read and react to posts with care. If you don’t agree or are offended by someone’s post, take a step back and think before you reply. Since we can’t talk in-person to each other, we must recognize that we may be misunderstanding stories or posts. Please be sensitive to others’ feelings and ask for clarification before acting out.

Search before starting new topics. To keep our message boards easy to use, please use the search bar to locate topics of interest before starting a new thread. If you start a new thread, please use obvious subject headings and words that will catch the attention of others. Topics will be archived after 21 days of inactivity. To view past topics and posts, click on archive topics within each of the forums.

Stick to our guidelines. To keep this site safe for everyone, please do not post: doctors' names, treatment facility names and treatment specifics, contact information for others without their consent, links to websites with uncertain content or advertisements, requests for fundraising, items for sale, requests for study, survey and/or questionnaire participation or provocative information.

Sharing photos. Please use good taste and appropriate images when adding photos to your profile or personal stories. Photos should be in .jpg format.

Not following the rules? Crohn's & Colitis Community moderators routinely scan the message boards and will delete tasteless posts. If you post inappropriate messages or pictures or use offensive language in a post on multiple occasions, you will be notified via email and your account will be inactivated.

Report foul play. Help the Crohn's & Colitis Community moderators by reporting anyone that posts inappropriate messages or pictures by clicking the 'Report Abuse' button under the message or emailing ccfacommunity@ccfa.org.

Questions or concerns? Please feel free to email us at ccfacommunity@ccfa.org with any questions or concerns. We want you to feel comfortable here.

Terms & Conditions. By posting your story, questions, concerns and other information on the Community, you grant the Crohn's & Colitis Foundation or its authorized agent permission to publish, reproduce, record and use your stories as Crohn's & Colitis Community or the authorized agent sees fit in any medium or forum in a manner which helps to further the Crohn's & Colitis Community mission. You agree to release and hold harmless Crohn's & Colitis Community from any and all liability by any third party that may arise from the release of information to any third party or by any third party and agree that all text and other content made by you, for you or the person for whom you are the parent/guardian, shall be the exclusive property of Crohn's & Colitis Community. The Crohn's & Colitis Community cannot verify every claim made by a third party contributor to our Community and is not responsible for the authenticity of information posted.

Thank you! The Crohn's & Colitis Community is successful because of members like you!

Thanks!
The Crohn's & Colitis Community Team

*Any postings on the Crohn's & Colitis Community site should not replace your physician's advice. Always check with your personal physician before taking any action regarding your health.

Community Forum

Finally Relief by managing Diet

Related Topics

Weight and Eating

Nausea and Vomiting with ...

Help losing weight

Crohn's & Colitis Community Forum

Rules

Welcome to the Crohn's & Colitis Community!

You are leaving this site