Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Previous Topic Next Topic

difficult choices

Sun, May 29, 2016 3:07 PM

I just found this site. It's been 14 month of a downward spiral. What started with mild symptoms of ulcerative proctitis is now severe ulcerative colitis that has spread to my entire descending colon. 50 mg of Prednisone a day has made things barely tolerable. Without it I would not be able to leave my house. Mornings are my difficult time. I get up at 6am and after 10am I am usually able to go to work. Fortunately I own the business, but when I am not there at 8am we lose money. That stresses me out a lot, especially since I just bought my first home and I have a huge mortgage.

On June 1st I am scheduled to start Remicade, but I am full of fear. More stress adding to the problem. I am afraid of having to be on Remicade for the rest of my life. I just saw a acupuncturist/dietician who handed me Breaking the Vicious Cycle and suggested I start with the Specific Carbohydrate Diet. It looks too strict to me and it causing more anxiety. My GI doctor has never even mentioned my diet. Why?

Anxiety is through the roof.

I will gladly take all the advice I can get.

queriss
Joined May 29, 2016

Tue, July 26, 2016 8:57 PM

Reply posted for queriss.

Hey queriss,

Just now seeing your post. I agree with the first comment about stress. It's a catch 22. Just wanted to let you know I've been on Remicade for a couple of years now and it has put me into remission with minor flares from time to time. It was scary for me at first too, but after doing if for so long now it's totally worth it in order to feel better and get your life back to "normal". Hope your first infusion went well and your feeling better. And if it helps... my gastro says the the medicines are getting better and better each day. Hang in there!

artlover
Joined Jul 26, 2016

Thu, June 02, 2016 9:15 AM

Reply posted for queriss.

Hi,

First of all after reading your post you seem to have a lot of stress.

Stress makes matters much worse. Do you do moderate exercise daily? Do you meditate? If not look into those practices and others that reduce stress.

I understand how you feel because that diet was too restrictive for me too.....that being said it might be wise to give it one week and see how you feel. You can do it for one week right?

Just try it for 7 days and see if anything changes.... You might want to go on a two day bone broth and water fast first...but that is up to you and your doctor....

I am not on medication right now and never plan on taking any and am doing well. You might need the medication for awhile. ...it takes a little time and patience but you can be normal....and belief plays a huge role in your future health. Do you believe you will get well or do you believe you will always be this way? Choose your belief....

I have a book if you want it....www.healingmygut.com

beaum2000
Joined Jun 1, 2016

Related Topics

Weight and Eating

KelseyShoup
Joined Sep 26, 2020

Hello so I've been struggling to get my weight....

read more

Nausea and Vomiting with ...

crystal73d
Joined Aug 4, 2021

Hi all- I have been diagnose with Crohns disease ....

read more

Help losing weight

Twinsnana
Joined Feb 13, 2022

You're definitely not alone. I have Ulcerative....

read more

Welcome to the Crohn's & Colitis Community!

This website is associated with the Crohn's & Colitis Foundation.

Please read our Top 12 Rules before posting messages and sharing stories. Always be courteous and sensitive to others!

Intended audience. The Crohn's & Colitis Foundation Online Community is intended for patients and their caregivers, family and friends. The Community is not intended for industry representatives or advertisers and these individuals are not permitted to participate on the site.

Meet the Crohn's & Colitis Community! Browse our site to see what our community is talking about and find issues important to you.

Join in and share your stories. After you feel comfortable with our site, register to share your thoughts on a regular basis.

Stay secure. Remember that our site can be viewed by anyone on the Internet. With the exception of our registration and personal pages, search engines are available within this site. To guard your privacy, follow these simple rules: do not share your address, phone number, details about your family, or anything else you would feel uncomfortable with others reading. If you post your personal email, be aware that you may receive spam e-mail from spammers who gather addresses off of the web.

Read and react to posts with care. If you don’t agree or are offended by someone’s post, take a step back and think before you reply. Since we can’t talk in-person to each other, we must recognize that we may be misunderstanding stories or posts. Please be sensitive to others’ feelings and ask for clarification before acting out.

Search before starting new topics. To keep our message boards easy to use, please use the search bar to locate topics of interest before starting a new thread. If you start a new thread, please use obvious subject headings and words that will catch the attention of others. Topics will be archived after 21 days of inactivity. To view past topics and posts, click on archive topics within each of the forums.

Stick to our guidelines. To keep this site safe for everyone, please do not post: doctors' names, treatment facility names and treatment specifics, contact information for others without their consent, links to websites with uncertain content or advertisements, requests for fundraising, items for sale, requests for study, survey and/or questionnaire participation or provocative information.

Sharing photos. Please use good taste and appropriate images when adding photos to your profile or personal stories. Photos should be in .jpg format.

Not following the rules? Crohn's & Colitis Community moderators routinely scan the message boards and will delete tasteless posts. If you post inappropriate messages or pictures or use offensive language in a post on multiple occasions, you will be notified via email and your account will be inactivated.

Report foul play. Help the Crohn's & Colitis Community moderators by reporting anyone that posts inappropriate messages or pictures by clicking the 'Report Abuse' button under the message or emailing ccfacommunity@ccfa.org.

Questions or concerns? Please feel free to email us at ccfacommunity@ccfa.org with any questions or concerns. We want you to feel comfortable here.

Terms & Conditions. By posting your story, questions, concerns and other information on the Community, you grant the Crohn's & Colitis Foundation or its authorized agent permission to publish, reproduce, record and use your stories as Crohn's & Colitis Community or the authorized agent sees fit in any medium or forum in a manner which helps to further the Crohn's & Colitis Community mission. You agree to release and hold harmless Crohn's & Colitis Community from any and all liability by any third party that may arise from the release of information to any third party or by any third party and agree that all text and other content made by you, for you or the person for whom you are the parent/guardian, shall be the exclusive property of Crohn's & Colitis Community. The Crohn's & Colitis Community cannot verify every claim made by a third party contributor to our Community and is not responsible for the authenticity of information posted.

Thank you! The Crohn's & Colitis Community is successful because of members like you!

Thanks!
The Crohn's & Colitis Community Team

*Any postings on the Crohn's & Colitis Community site should not replace your physician's advice. Always check with your personal physician before taking any action regarding your health.