Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Previous Topic Next Topic

Please help

Tue, June 07, 2016 8:08 PM

My son had his,colon removed 05/04\16 he was diagnosed with uc 04/05/16. Before surgery he had 2 blood transfusion and a picc line. He lost 30 pounds in a month. He was discharged from hospital today for a bacterial infection he is severely anemic and malnourished. At what point does this get better. I read once the colon is removed once you heal from surgery it does. He has an ileostomy bag and suppose to get a jpouch. Im worried he is not making enough progress. Or is this all normal. Please help me

rhondas36@yahoo
Joined Jun 7, 2016

Sat, July 16, 2016 1:07 PM

Reply posted for rhondas36@yahoo.

Read my post in response to managing Crohn's without meds. I give a couple of dietary tips for nutrition. Write me back if you have further questions. Your son needs nutrition. I have some ideas.

marciam
Joined Jul 16, 2016

Sun, June 26, 2016 8:28 PM

Reply posted for simjohn23.

Thank you so much for your reply. Since my last post my son has gotten better each day. He has gained 14 lbs and feeling much better thank God. I'm so glad to hear your doing well. I'm praying for everyone. God bless you all!

rhondas36@yahoo
Joined Jun 7, 2016

Sat, June 25, 2016 3:14 PM

Reply posted for rhondas36@yahoo.

Hey rhondas36,

Sorry to hear that about your son. I also lost weight over my whole ordeal. I lost about 40 lbs all together, but I am slowly getting it back now. I was also diagnosed with UC, but the medications were not healing my enlarged colon. I had my colon removed on 5/23/16.
I’m not sure what a picc line is, and it seems weird that the hospital would discharge him when he doesn’t seem fit enough to be discharged. For me, I did have a minor setback after the surgery, but that lasted only a few (about 4) days. Since then, I’ve continually gotten better each day. I am very comfortable with emptying/changing the ileostomy bag. My stitches have just about cleared up. I do have two more operations to complete my surgery, but my doctor says everything looks good.
I think for your son, he should try to keep himself hydrated. Continually drink water throughout the day. He should also try his best to eat steadily. Breakfast, lunch and dinner with snacks in-between to keep him nourished. I’ve been staying away from high-fiber foods, spicy foods, greasy and fried foods. I stayed away from raw vegetables (they would need to be cooked for me to eat them). And skin (on chicken, fruits, etc.) should be removed. Meats should be lean, and cooked well done. But make sure they are small portions. I found that this helped me with my eating and digesting. Lastly, try to get some kind of exercise daily. Walking is great. Anything that keeps him out of bed. When I was in the hospital, I would be in the bed pretty much the whole day. My doctors advised me to stand, walk, whatever, just so that I would not constantly be lying in bed. This helps with blood flow, and with digestion.
So, that would be my advice. Stay hydrated. Stay nourished. Get exercise. Get rest. And stay in touch with the doctors. Hopefully this helps. Stay positive and God bless.

Aloha

simjohn23
Joined May 23, 2016

Related Topics

Weight and Eating

KelseyShoup
Joined Sep 26, 2020

Hello so I've been struggling to get my weight....

read more

Nausea and Vomiting with ...

crystal73d
Joined Aug 4, 2021

Hi all- I have been diagnose with Crohns disease ....

read more

Help losing weight

Twinsnana
Joined Feb 13, 2022

You're definitely not alone. I have Ulcerative....

read more

Welcome to the Crohn's & Colitis Community!

This website is associated with the Crohn's & Colitis Foundation.

Please read our Top 12 Rules before posting messages and sharing stories. Always be courteous and sensitive to others!

Intended audience. The Crohn's & Colitis Foundation Online Community is intended for patients and their caregivers, family and friends. The Community is not intended for industry representatives or advertisers and these individuals are not permitted to participate on the site.

Meet the Crohn's & Colitis Community! Browse our site to see what our community is talking about and find issues important to you.

Join in and share your stories. After you feel comfortable with our site, register to share your thoughts on a regular basis.

Stay secure. Remember that our site can be viewed by anyone on the Internet. With the exception of our registration and personal pages, search engines are available within this site. To guard your privacy, follow these simple rules: do not share your address, phone number, details about your family, or anything else you would feel uncomfortable with others reading. If you post your personal email, be aware that you may receive spam e-mail from spammers who gather addresses off of the web.

Read and react to posts with care. If you don’t agree or are offended by someone’s post, take a step back and think before you reply. Since we can’t talk in-person to each other, we must recognize that we may be misunderstanding stories or posts. Please be sensitive to others’ feelings and ask for clarification before acting out.

Search before starting new topics. To keep our message boards easy to use, please use the search bar to locate topics of interest before starting a new thread. If you start a new thread, please use obvious subject headings and words that will catch the attention of others. Topics will be archived after 21 days of inactivity. To view past topics and posts, click on archive topics within each of the forums.

Stick to our guidelines. To keep this site safe for everyone, please do not post: doctors' names, treatment facility names and treatment specifics, contact information for others without their consent, links to websites with uncertain content or advertisements, requests for fundraising, items for sale, requests for study, survey and/or questionnaire participation or provocative information.

Sharing photos. Please use good taste and appropriate images when adding photos to your profile or personal stories. Photos should be in .jpg format.

Not following the rules? Crohn's & Colitis Community moderators routinely scan the message boards and will delete tasteless posts. If you post inappropriate messages or pictures or use offensive language in a post on multiple occasions, you will be notified via email and your account will be inactivated.

Report foul play. Help the Crohn's & Colitis Community moderators by reporting anyone that posts inappropriate messages or pictures by clicking the 'Report Abuse' button under the message or emailing ccfacommunity@ccfa.org.

Questions or concerns? Please feel free to email us at ccfacommunity@ccfa.org with any questions or concerns. We want you to feel comfortable here.

Terms & Conditions. By posting your story, questions, concerns and other information on the Community, you grant the Crohn's & Colitis Foundation or its authorized agent permission to publish, reproduce, record and use your stories as Crohn's & Colitis Community or the authorized agent sees fit in any medium or forum in a manner which helps to further the Crohn's & Colitis Community mission. You agree to release and hold harmless Crohn's & Colitis Community from any and all liability by any third party that may arise from the release of information to any third party or by any third party and agree that all text and other content made by you, for you or the person for whom you are the parent/guardian, shall be the exclusive property of Crohn's & Colitis Community. The Crohn's & Colitis Community cannot verify every claim made by a third party contributor to our Community and is not responsible for the authenticity of information posted.

Thank you! The Crohn's & Colitis Community is successful because of members like you!

Thanks!
The Crohn's & Colitis Community Team

*Any postings on the Crohn's & Colitis Community site should not replace your physician's advice. Always check with your personal physician before taking any action regarding your health.