Hi. Im 29 years old and have been diagnosed with Crohns disease since 2012.My main persistent symptoms have been nausea, lack of appetite, and filling full really quickly. I was essentially in a flare from 2012 until 2017. It was labeled severe and I had fistulas, infections, and blockages. I was put on TPN as it was deemed I was too malnourished/weak for a needed bowel resection. I was on TPN a few weeks prior to my surgery which was April 2017.After that, they took the TPN away. Since then, my scans have all been normal. I was not given a colostomy. However, my appetite issues have not been resolved. I still have no appetite and have actually lost a few pounds again. I am down to 87 pounds.My GI is very frustrated. He thinks I am spiraling and really malnourished still. He is recommending tube feeding. I have a consultation in a couple of weeks to discuss it with the nutrition team in OH. I know tube feeding comes with risks. I went to the surgery kicking. Im very apprehensive about evasive/risky procedures. Has anyone been through this? I have a 5 year old and Im so conflicted. I want to gain weight and feel strong but having a feeding tube terrifies me. What would you do?
Reply posted for KaylaShay.
Have you tried the AIP (autoimmune protocol) diet? I was diagnosed with UC a month ago and have started this diet. This book really helps explain autoimmune diseases and the effect of food on our body and how it helps with autoimmune.
https://www.amazon.com/Paleo-Approach-Reverse-Autoimmune-Disease/dp/1936608391/ref=sr_1_2?crid=NROH4EHD1HTN&keywords=the+paleo+approach&qid=1556216251&s=gateway&sprefix=the+paleo+app%2Caps%2C165&sr=8-2
Reply posted for KaylaShay.
Enternal****
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