Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Enternal Nutrition


Sat, April 20, 2019 6:03 PM

Hi. Im 29 years old and have been diagnosed with Crohns disease since 2012.My main persistent symptoms have been nausea, lack of appetite, and filling full really quickly. I was essentially in a flare from 2012 until 2017. It was labeled severe and I had fistulas, infections, and blockages. I was put on TPN as it was deemed I was too malnourished/weak for a needed bowel resection. I was on TPN a few weeks prior to my surgery which was April 2017.After that, they took the TPN away. Since then, my scans have all been normal. I was not given a colostomy. However, my appetite issues have not been resolved. I still have no appetite and have actually lost a few pounds again. I am down to 87 pounds.My GI is very frustrated. He thinks I am spiraling and really malnourished still. He is recommending tube feeding. I have a consultation in a couple of weeks to discuss it with the nutrition team in OH. I know tube feeding comes with risks. I went to the surgery kicking. Im very apprehensive about evasive/risky procedures. Has anyone been through this? I have a 5 year old and Im so conflicted. I want to gain weight and feel strong but having a feeding tube terrifies me. What would you do?

FPO KaylaShay
Joined Mar 23, 2017

Thu, April 25, 2019 1:35 PM

Reply posted for KaylaShay.

Have you tried the AIP (autoimmune protocol) diet? I was diagnosed with UC a month ago and have started this diet. This book really helps explain autoimmune diseases and the effect of food on our body and how it helps with autoimmune.

https://www.amazon.com/Paleo-Approach-Reverse-Autoimmune-Disease/dp/1936608391/ref=sr_1_2?crid=NROH4EHD1HTN&keywords=the+paleo+approach&qid=1556216251&s=gateway&sprefix=the+paleo+app%2Caps%2C165&sr=8-2

FPO SHELKINS
Joined Apr 17, 2019

Sat, April 20, 2019 7:20 PM

Reply posted for KaylaShay.

Enternal****

FPO KaylaShay
Joined Mar 23, 2017

Related Topics

Weight and Eating
Author Image KelseyShoup
Joined Sep 26, 2020

Hello so I've been struggling to get my weight....

read more

Help losing weight
Author Image Twinsnana
Joined Feb 13, 2022

You're definitely not alone. I have Ulcerative....

read more

Nausea and Vomiting with ...
Author Image crystal73d
Joined Aug 4, 2021

Hi all- I have been diagnose with Crohns disease ....

read more