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I have ulcerative colitis and I just wanted to write this post because when I was flaring often I would end up on message boards and I would see a lot of people echoing each other and worried desperately looking for advice sometimes parents of young children. I don't wanna give a long story here but I went through the trenches with this disease like I know some of you have. Can't eat this can't eat that. Flared for a few years. I was to the point Humira 1 shot every two weeks was not working. Even the prednisone I was taking wasnt really working. Multiple bloody stools a day I was in a bad place. Then one day I was happened to go into a grocery store in a Asian neighborhood and for some reason I bought some goji berries I don't know why I bought them and I ate all of them. I didn't think anything of it the next day I felt better and for the first time in a long time I didnt have a bloody bowel movement. I couldn't believe it I still had some gas pressure but no blood. I then started taking about 4000 IU of vitamin D per day and the gas pressure stopped as well. That was 2 years ago and that was my last flare I still take 2 mesalamine lialda pills per day 4000 IU of vitamin D and about 2 servings of goji berries. and now I drink 3 cups of coffee a day pizza candy some times. I don't feel like Im crippled by this stupid disease. I just wanted to share this it's worth a shot. Your never cured they say but I feel like I am.
Reply posted for Roseberry.
I am suffering from severe ulcerative colitus since 1 and half year. I was unknown that i am suffering from ulcerative colitus just recently came to know. I was having severe diarrhea from last 1 and half years no matter what i eat i was havinh diarrhea life is too painful for me.
dr ask me for calprotectin it was 72. But my condition getting worse he said i am having ulcerative colitus but he need to do colonoscopy which i am afraid of and i refused and i prescribe me to use LIALDA 4g a day.
when i read your measage i found little hope from darkness which goji berries you used dried form? Is 4g is not very high potency medicine? How should i control my symptoms?
also how you are using vitamin D 4000IU daily i am not finding such potency in my local pharmacy.
what are your timings for use?
please i am waiting for your reaponse as your post is little hope for me
Reply posted for Adonis88.
Interesting.. Vitamin D, you say? I'll look into the science behind that and see if there's anything to be found out in that department. :)