Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Long-term diarrhea seven years after total colectomy.


Mon, January 11, 2021 3:00 PM

After living with Colitis for 19 years, I had a total colectomy.

Seven years later, I'm still having 12-15 bowel movements a day, including through the night.

I take 4 Imodium a day.

How do others deal with long-term diarrhea? I find it exhausting and depressing.

I just started Metamucil, hoping that will help.

I read that a low glycemic index diet can help by slowing down digestion.

Any advice is welcome, thanks!

FPO sasigler
Joined Jul 27, 2018

Sat, January 30, 2021 3:52 PM

Reply posted for sasigler.

I had your exact same problem. Turns out after the collectomy, which did get rid,of the colitis, I developed Crohns.  Have your gastroenterologist check. There are meds and treatments for crohns. Also, check,for,anemia. All that diarrhea I was passing blood. Ended up needing five pints infusion.

FPO charbs
Joined Oct 31, 2016

Related Topics

Weight and Eating
Author Image KelseyShoup
Joined Sep 26, 2020

Hello so I've been struggling to get my weight....

read more

Help losing weight
Author Image Twinsnana
Joined Feb 13, 2022

You're definitely not alone. I have Ulcerative....

read more

Nausea and Vomiting with ...
Author Image crystal73d
Joined Aug 4, 2021

Hi all- I have been diagnose with Crohns disease ....

read more