Community Forum

Heyo! My name's Joseph, but you can call me Joe or Joey if you'd like. I'm 19 and I've been diagnosed with Crohn's disease since December of 2016. Even though it's only been two years I've been through a lot of struggles with my disease and I'm looking for some people around my age that I can relate to. Just reply with a bit about yourself and somewhere I can contact you!

Reply posted for JoeSoup.

Hey Joey,

My name is Kelly, and I am 25 years old, and I was officially diagnosed with Crohns when I was 16. I have had quite an experience with it as well. I have yet to hit remission, and I have had numerous extraintestinal symptoms (specifically eyes and SI joint).

Even with everything we go through we can still be successful. I am currently pursuing my PhD, and I am a powerlifter!

The disease comes in waves, and it's important to manage your mental health on top of the physical health - including finding an understanding community and not blaming yourself for the disease.

I hope things are looking up! My email is kellymguinn@gmail.com

Reply posted for JoeSoup.

Hi, I am a health care professional that has been in GI field for about 15 years. This disease is hard to control sometimes but with correct treatment, many of the patients can be without symptoms for many years or forever while they keep their treatment. You should have a close follow up with your GI to find the best treatment that relieves your symptoms and disease.  No all treatments work in the same way for everyone, then your Dr. and you need to find together the best option for you. Many patients have achieved this goal!! You can do it as well!!

Reply posted for Liza098.

Hi Liza098 and all in this thread,

Welcome to the community and I hope you are doing well! It can definitely be hard to find others who can relate to the struggles of IBD. It's hard to know where to find others, so it's great that this forum exists! Support groups and Camp Oasis are great ways to find others in your area to connect with. It's also worth looking into whether there are any local education or advocacy events in your area. I'm open to connecting with you if you would like! Otherwise, another thing I'd suggest is asking you GI if he or she knows of any other groups or patients that you may be able to connect with. Best of luck! 

Reply posted for JoeSoup.

Hey joey well I super late but I’m going to reply anyways I was recently diagnosed and I would also like to find some people close to my age to be able to talk to about crohns who understand the issues that come with crohns my email is arbanks8332@me.com 

Reply posted for aleahmd.

Also my email is aleah.deschmidt@yahoo.com if you wanted to talk 

Reply posted for JoeSoup.

HI! My name is Aleah and I am 20. I attend the University of Washington in Seattle and was diagnosed with Crohn's when I was 14. I first met other patients my age when I went to Camp Oasis in middle school. I think foundation events are a great way to meet other paitents. In Seattle we have a young professionals group that meets regularly, you should check to see if your area has something similar!

Reply posted for JoeSoup.

Hi Joey my name is Melody, and I was recently diagnsed wih Crohn's disease if you want to talk feel free to email me at bermudezmelody@gmail.com

Reply posted for JoeSoup.

Hi Joey!

My name is Emily. I'm 19 years old as well and I was dianogsed in August of 2016. I've been struggling too even after two years. I realize that I'm late replying to your post since you posted in August...
If you see this you can contact me at emilypie2320@gmail.com

Reply posted for JoeSoup.

Hi Joseph, my name is Mia. I was diagnosed in 2010, im 18 now. I dont any friends with crohns disease and havent met very many people. I would love to become friends my email is pattersonmia80@gmail.com. 

Reply posted for JoeSoup.

Hey joe :) my name is Erica and I’m 23. I was diagnosed when I was 17 and have yet to meet anyone with Crohn’s disease, so I would definitely be interested in chatting via snapchat/text/Skype