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My Story


Thu, April 20, 2023 6:13 PM

 

    Hey everyone, I just wanted to make this post because as I’ve been finishing up my sophomore year of college, I’ve been reflecting on the last 10 or so years of my life. I would like to talk about my story in the hopes of it maybe making someone, who is in the position I was not long ago, feel more hopeful. I was diagnosed with Crohn’s disease when I was in the fourth grade. Before this I had alot of friends, I played baseball, and was the class clown. I missed a substantial amount of school due to my illness. For a while I was just in a lot of pain with no effective treatments and I was severely underweight. However I finally started taking Remicade which stopped the inflammation and the change was night and day. Along with feeling better came being able to eat. I had a lot of catching up to do, and I ended up over-catching up and was overweight going into middle school, which was not a good experience for me. This, along with feeling like a spectacle every time I walked into class after being out for a week or two, made going to school an excruciating event.
       A couple years after my diagnosis I had surgery to remove an obstructed part of my small intestine. I remembered being most upset about missing out on my best friends birthday party due to being in the hospital. Middle school was not fun, I constantly was missing school because of not feeling well. I was given a homebound teacher each year, and every year that I missed made it feel like the prospect of making new friends was more and more unattainable. I ended up missing a substantial amount of high-school as well. When COVID hit in my senior year of high-school it actually had some positive effects for me. Due to classes being virtual I was able to participate in a full year of school, the first time in a very long time. Luckily I was able to get into college-the possibility of which was in question seeing how much school I missed. I was very afraid of the idea of having to make new friends in college, due to me being involuntarily separated from my friends early on in school.
     The point I'm trying to make is no matter how hopeless the future looks, it will get better. I have made amazing friends my first two years in school, and have gotten to participate in numerous opportunities. My illness seems to be under control and I can say I’m in remission. I do not know how long It will be until another flare up, or if there will ever be another one, but the best advice I can give it just to take it day by day. Appreciate every day that your illness doesn’t affect you, and never let the fear of feeling bad stop you from taking advantage of opportunities. Numerous times I let the fear of feeling bad stop me from truly enjoying experiences. I also never thought that life could get this good, but it can. So, if you’re struggling, just keep on keeping and I promise it will get better.

I'd love to hear other peoples successes and celebrations!

FPO tbg1501
Joined Apr 20, 2023

Sat, April 20, 2024 9:42 AM

Reply posted for dovihi97.

Thanks for sharing. I read it to my daughter who is suffering badly from UC atm and it made her feel better and more hopeful!

FPO gbc80
Joined Apr 20, 2024

Wed, April 10, 2024 9:25 AM

Reply posted for gameofcrohns42.

Finding Luxury Casino was a game-changer for my evening routine. It combines a wide array of games with the chance to win some money, making it an excellent way to unwind and add a bit of excitement to my nights. For anyone in Australia looking for a user-friendly and entertaining online gaming experience, this site is a fantastic discovery, perfectly fitting into my evening leisure activities and offering a unique blend of fun and potential profit.

FPO dovihi97
Joined Feb 5, 2024

Wed, May 10, 2023 8:17 PM

Reply posted for tbg1501.

Thanks for sharing!

FPO aleahmd
Joined Sep 8, 2022

Mon, May 01, 2023 5:57 PM

Reply posted for tbg1501.

I've had a lot of celebrations this year I've received several proclamations for Crohn's disease my kids will be graduating next month things are looking positively 

FPO gameofcrohns42
Joined May 11, 2023

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