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Getting my first Remicade infusion..

Thu, September 29, 2011 3:34 PM

Hi everyone.. I've had Crohn's disease for about 4 years now. I'm 20 yrs old. Ive been on, Pred. & Entocort. Im currently on Pentasa, Nexium (for acid reflex) & Imurhan. I was in remission for a good while. But there is always a certain amount of time when my body gets immune to these medications and eventally stop working. So my doctor decided it was time to get on something new. Remicade!

I'm a little concern about the side effects? Being on Pred. I loss a lot of hair, bones are very weak, rosey cheeks, acne, racing heart beat, etc. So I'm kind of traumatized & am not looking forward to what kind of side effects I will be facing when I start Remicade. Even though I know Remicade is not a steroid.

Just want to hear someone elses experience when they got their first and second infusions. Thanks :)

ang91
Joined Sep 29, 2011

Thu, October 13, 2011 10:51 PM

Reply posted for ang91.

Hi,

I was diagnoised with Chron's when I was 14; I am now 24. I have been on Asacol, Imuran, Prednisone, and now I am taking Remicade. I have been on Remicade for a little over 7 years now and it has controlled my symptoms the best. From my understanding Remicade's long-term side affects aren't as bad as Prednisone's. I too have weak bones from the prednisone and are taking alot of calcium and vitamin d to make up for this. My first two Remicade treatments were pretty uneventful; they do make you extremely tired and I usually allow myself a couple days to just rest afterwards. However, a couple years ago I did have an allergic reaction while they were infusing me so now they give me IV medication before hand to prevent allergic reactions. I also have had my dosage upped many times. I started with every 8 weeks with a dosage of 5mg per kg. I am now at every 6 weeks with 10mg per kg. Overall, Remicade has controlled my Crohn's symptoms, but I find that I pick up colds alot more.

I hope you have success with controlling your symptoms

cmc274
Joined Oct 13, 2011

Thu, September 29, 2011 5:43 PM

Reply posted for alanschachter.

Do you have an email or wesite I can reach you at for more information?

ang91
Joined Sep 29, 2011

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