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Flared and Scared

Tue, January 03, 2017 7:09 PM

I was diagnosed with ulcerative proctitis about 10years ago. It started out with urgency and rectal bleeding. The symptoms only lasted for a short period of time back then so I didn't put much thought into it. Now, 10years down the line I feel like my life has been crushed by this illness. I have been on Lialda tablets and canasa if suppositories for the past few years. I recently took a probiotic and two weeks after that I started deficating bloodclots and ended up in the ER. After discharge, I started to get have very painful bowel movements. Most often it's not even stool that comes out, it's more like mucus or pus? I go very often to the point that I think my rectum is tearing. At one point, I was out of work and couldn't walk well. Also, at this time I felt alot of bladder pressure?? Recently, I have felt like something protrudes from my rectum if I have multiple bowel movements. I called my doctor and he thought I was having a flare and started me on a prednisone taper, but he didn't seemed too impressed with my symptoms. As I tapered from 40mg to 20mg, I started with rectal bleeding and terrible incapicating rectal spams that landed me a four day hospital stay. I was discharged yesterday after a colonoscopy that showed moderate proctitis and hemorrhoids. They stopped my prednisone and now I just started taking a Uceris tablet and Uceris foam along with my Lialda and canasa suppository and Tramadol for pain management. My rectum feels alittle better, but I feel exhausted. I have a low grade fever, and have terrible ulcers in my mouth, and feel sick. Also, I have joint pain and night sweats at times. Mouth ulcers, joint pain, and on and off night sweats is something that I have been dealing with for a little bit, but since my "flare" I feel like it has all been exacerbated. My doctor seems to think that is all UC related. Has anyone else ever had anything similar happen to them? I feel like I will never get better..

tlns7384
Joined Jan 3, 2017

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